Effect of the Care For Participation+ intervention for adults with visual and severe or profound intellectual disabilities

  • Gineke Hanzen (Speaker)

    Activity: Talk and presentationAcademic presentationAcademic


    According to the Convention on the Rights of Persons with Disabilities, participation as a human right also applies to adults with visual and severe or profound intellectual disabilities (VSPID). An intervention to improve participation of these adults, was investigated.
    The aim was to examine the effects of a new intervention on the DSPs ’attitudes towards improving participation of adults with VSPID.
    The intervention Care for Participation (CFP+) focuses on exploring various roles and activities for adults with VSPID. Following systematic training, DSPs were taught to increase active involvement of adults with VSPID, and organize support for new activities. CFP+ was compared to control groups providing care as usual, or, receiving a brochure with the conceptual model of participation which they were free to integrate in their work. Effects on the attitudes of DSPs (n=43) were measured at baseline, 6 and 12 months with a newly developed questionnaire and written profiles of the adults with VSPID from the perspective of DSPs.
    The attitudes related to ‘Leisure/Recreation’ and ‘Ability to act on participation’ of the DSP in the CFP+ group increased, however, the effects were not significantly different from both control groups over time. CFP+ had a positive effect on professionals describing significantly fewer disabilities and limitations at 6 months, reflecting a more positive attitude towards participation than controls; this effect was reduced after 12 months.
    CFP+ does not seem to have a maintenance effect on the attitudes towards participation of professionals working with adults with VSPID. However, implementation difficulties may have hampered the full potential of CFP+. Moreover, study limitations were the small sample size, dropout and the newly developed questionnaire. Future outcomes of actual participation of the target group may shed more light on the value of CFP+.
    Event titleSIRG- PIMD Berlijn
    Event typeConference
    LocationBerlijn, Germany, BerlinShow on map
    Degree of RecognitionInternational