Additional file 2 of Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries

  • Bruna dos Santos Vieira (Creator)
  • César H. Bernabé (Creator)
  • Shuxin Zhang (Creator)
  • Haitham Abaza (Creator)
  • Nirupama Benis (Creator)
  • Alberto Cámara (Creator)
  • Ronald Cornet (Creator)
  • Clémence M.A. Le Cornec (Creator)
  • Peter A. C. T'Hoen (Creator)
  • Franz Schaefer (Creator)
  • Joeri van der Velde (Creator)
  • Morris Swertz (Creator)
  • Mark D. Wilkinson (Creator)
  • Annika Jacobsen (Creator)
  • Marco Roos (Creator)
  • Franz Schaefer (Creator)
  • Morris Swertz (Creator)

Dataset

Description

Additional file 2.. Complete challenge-solution matrix.
Date made available14-Dec-2023
Publisherfigshare

Keywords on Datasets

  • FAIR
  • Stewardship
  • Rare disease
  • Patient registry
  • Data steward

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