Data from: Comparing the Health State Preferences of Older Persons, Informal Caregivers and Healthcare Professionals: A Vignette Study

  • Cynthia S. Hofman (Creator)
  • Peter Makai (Creator)
  • Jeanet W. Blom (Creator)
  • Johannes Boter (Creator)
  • Bianca M. Buurman (Creator)
  • Marcel G M Olde Rikkert (Creator)
  • Rogier Donders (Creator)
  • Rene J. F. Melis (Creator)



    The Older Persons and Informal Caregivers Survey- Minimum Dataset (TOPICS-MDS) collects uniform information from research projects funded under the Dutch National Care for the Elderly Programme. To compare the effectiveness of these projects a reference-weighted outcome measure that combined multidimensional TOPICS-MDS outcomes into a composite endpoint (TOPICS-CEP) was developed based on the health state preferences of olde persons and informal caregivers.
    Vignette studies were conducted. Participants assessed the general wellbeing of older persons described in vignettes on a scale (0-10). Mixed linear analyses were used to obtain and compare the preference weights of the eight TOPICS-CEP components: morbidities, functional limitations, emotional wellbeing, pain experience, cognitive problems, social functioning, self-perceived health, and self-perceived quality of life (QOL).
    Overall, 330 healthcare professionals, 124 older persons and 76 informal caregivers participated.
    Date made available26-Jan-2015
    PublisherUniversity of Groningen

    Keywords on Datasets

    • health state preference
    • older persons
    • informed caregivers
    • healthcare professionals
    • Composite Endpoint

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