Autonomy in participation in cerebral palsy from childhood to adulthood

Perrin-Decade Study Grp, PIP Study Grp, Ann Katrin Schmidt*, Marloes van Gorp, Leontien van Wely, Marjolijn Ketelaar, Sander R. Hilberink, M. E. Roebroeck

*Corresponding author for this work

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    3 Citations (Scopus)


    Aim To determine the long-term development of autonomy in participation of individuals with cerebral palsy (CP) without intellectual disability. Method Individuals with CP (n=189, 117 males, 72 females; mean age [SD] 21y 11mo [4y 11mo], range 12-34y); were assessed cross-sectionally (46%) or up to four times (54%), between the ages of 12 and 34 years. Autonomy in participation was classified using phase 3 of the Rotterdam Transition Profile. A logistic generalized estimating equation regression model was used to analyse autonomy in six domains (independent variables: age, Gross Motor Function Classification System [GMFCS] level, and interaction between age and GMFCS level). Proportions of autonomy were compared to references using binomial tests (p

    Individuals with cerebral palsy without intellectual disability achieved autonomy in most participation domains. Regarding intimate relationships, they continued to have less experience compared to age-matched references. Development of autonomy was less favourable for individuals in Gross Motor Function Classification System levels III to V.

    Original languageEnglish
    Number of pages8
    JournalDevelopmental Medicine and Child Neurology
    Publication statusPublished - 2-Oct-2019


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