Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children

Jorieke Duvekot; Leontine W. ten Hoopen; Geerte Slappendel; Jan van der Ende; Frank C. Verhulst; Ad van der Sijde; Kirstin Greaves-Lord

doi:10.1007/s10803-016-2919-x

Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children

Jorieke Duvekot
, Leontine W. ten Hoopen
, Geerte Slappendel
, Jan van der Ende
, Frank C. Verhulst
, Ad van der Sijde
, Kirstin Greaves-Lord^*

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

12 Citations (Scopus)

20 Downloads (Pure)

Abstract

This paper provides an overview of the design and cohort characteristics of the Social Spectrum Study: a clinical cohort study that used a two-phase sampling design to identify children at risk for ASD. After screening 1281 children aged 2.5-10 years who had been consecutively referred to one of six mental health services in the Netherlands, children who screened positive for ASD (n = 428) and a random selection of screen negatives (n = 240) were invited to participate in diagnostic assessments and questionnaires regarding the child, family and society. A 1-year follow-up was also conducted. Results from this study may contribute to knowledge of the identification and characterization of children with ASD, family processes, and the impact of ASD on the family and society.

Original language	English
Pages (from-to)	33-48
Number of pages	16
Journal	Journal of Autism and Developmental Disorders
Volume	47
Issue number	1
DOIs	https://doi.org/10.1007/s10803-016-2919-x
Publication status	Published - Jan-2017
Externally published	Yes

Keywords

Autism spectrum disorder
Multicenter
Design
Clinical cohort
Attrition
Longitudinal
QUALITY-OF-LIFE
GENERAL-POPULATION
DSM-5 CRITERIA
HEALTH-CARE
SHORT FORMS
DISORDER
BEHAVIOR
PREVALENCE
SCALE
CLASSIFICATION

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Duvekot, J., ten Hoopen, L. W., Slappendel, G., van der Ende, J., Verhulst, F. C., van der Sijde, A., & Greaves-Lord, K. (2017). Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children. Journal of Autism and Developmental Disorders, 47(1), 33-48. https://doi.org/10.1007/s10803-016-2919-x

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title = "Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children",

abstract = "This paper provides an overview of the design and cohort characteristics of the Social Spectrum Study: a clinical cohort study that used a two-phase sampling design to identify children at risk for ASD. After screening 1281 children aged 2.5-10 years who had been consecutively referred to one of six mental health services in the Netherlands, children who screened positive for ASD (n = 428) and a random selection of screen negatives (n = 240) were invited to participate in diagnostic assessments and questionnaires regarding the child, family and society. A 1-year follow-up was also conducted. Results from this study may contribute to knowledge of the identification and characterization of children with ASD, family processes, and the impact of ASD on the family and society.",

keywords = "Autism spectrum disorder, Multicenter, Design, Clinical cohort, Attrition, Longitudinal, QUALITY-OF-LIFE, GENERAL-POPULATION, DSM-5 CRITERIA, HEALTH-CARE, SHORT FORMS, DISORDER, BEHAVIOR, PREVALENCE, SCALE, CLASSIFICATION",

author = "Jorieke Duvekot and \{ten Hoopen\}, \{Leontine W.\} and Geerte Slappendel and \{van der Ende\}, Jan and Verhulst, \{Frank C.\} and \{van der Sijde\}, Ad and Kirstin Greaves-Lord",

year = "2017",

month = jan,

doi = "10.1007/s10803-016-2919-x",

language = "English",

volume = "47",

pages = "33--48",

journal = "Journal of Autism and Developmental Disorders",

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number = "1",

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Duvekot, J, ten Hoopen, LW, Slappendel, G, van der Ende, J, Verhulst, FC, van der Sijde, A & Greaves-Lord, K 2017, 'Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children', Journal of Autism and Developmental Disorders, vol. 47, no. 1, pp. 33-48. https://doi.org/10.1007/s10803-016-2919-x

Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children. / Duvekot, Jorieke; ten Hoopen, Leontine W.; Slappendel, Geerte et al.
In: Journal of Autism and Developmental Disorders, Vol. 47, No. 1, 01.2017, p. 33-48.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - Design and Cohort Characteristics of the Social Spectrum Study

T2 - A Multicenter Study of the Autism Spectrum Among Clinically Referred Children

AU - Duvekot, Jorieke

AU - ten Hoopen, Leontine W.

AU - Slappendel, Geerte

AU - van der Ende, Jan

AU - Verhulst, Frank C.

AU - van der Sijde, Ad

AU - Greaves-Lord, Kirstin

PY - 2017/1

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AB - This paper provides an overview of the design and cohort characteristics of the Social Spectrum Study: a clinical cohort study that used a two-phase sampling design to identify children at risk for ASD. After screening 1281 children aged 2.5-10 years who had been consecutively referred to one of six mental health services in the Netherlands, children who screened positive for ASD (n = 428) and a random selection of screen negatives (n = 240) were invited to participate in diagnostic assessments and questionnaires regarding the child, family and society. A 1-year follow-up was also conducted. Results from this study may contribute to knowledge of the identification and characterization of children with ASD, family processes, and the impact of ASD on the family and society.

KW - Autism spectrum disorder

KW - Multicenter

KW - Design

KW - Clinical cohort

KW - Attrition

KW - Longitudinal

KW - QUALITY-OF-LIFE

KW - GENERAL-POPULATION

KW - DSM-5 CRITERIA

KW - HEALTH-CARE

KW - SHORT FORMS

KW - DISORDER

KW - BEHAVIOR

KW - PREVALENCE

KW - SCALE

KW - CLASSIFICATION

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DO - 10.1007/s10803-016-2919-x

M3 - Article

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JO - Journal of Autism and Developmental Disorders

JF - Journal of Autism and Developmental Disorders

IS - 1

ER -

Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children

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Keywords

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