Development and sensibility assessment of a health-related quality of life instrument for adults with severe disabilities who are non-ambulatory

Trees A. L. Zalmstra*, Agnes Elema, Willemijn van Gils, Heleen A. Reinders-Messelink, Corry K. van der Sluis, Annette A. J. van der Putten

*Corresponding author for this work

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Abstract

Background Insight in health-related quality of life (HRQoL) of adults with severe disabilities who are non-ambulatory is important, but a measure is lacking. The aim was to develop a HRQoL measure for this group.

Method The developmental process consisted of the adaptation process of a proxy HRQoL measure for children with severe disabilities who are non-ambulatory and the assessment of the sensibility of the developed instrument. A three-step process was used: focus groups, e-survey and interviews.

Results In total, 72% of the items remained unchanged. Three new items and one element to an existing item were added. In ten items, the formulation of the items was adapted to the target group. Concerning the sensibility, respondents suggested minor changes to the instruction and the output scales.

Conclusions This study has yielded a proxy HRQoL measure for adults with severe disabilities who are non-ambulatory, the CPADULT, with good sensibility.

Original languageEnglish
Number of pages9
JournalJournal of Applied Research in Intellectual Disabilities
DOIs
Publication statusE-pub ahead of print - 5-Mar-2021

Keywords

  • cerebral palsy
  • health&#8208
  • related quality of life
  • severe disabilities

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