Diagnostisch hulpmiddel dementie bij mensen met (zeer) ernstige verstandelijke (en meervoudige) beperkingen: ontwikkeling en eerste praktijktoets

Maureen Wissing, Simone Koudenburg, Ina van der Wal, Marieke Groen, Liesbeth van Dam, Johannes Hobbelen, Peter De Deyn, A Waninge, Alain Dekker*

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review


Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Currently, no standardized
dementia screening instrument exists for people with SPI(M)D. Therefore, development of a suitable instrument to aid diagnosis of dementia in
this population is desired.

Aim: The aim of this study was 1) to develop an instrument for psychologists and psychological assistants to identify dementia-related changes in people with SPI(M)D and 2) to examine validity, reliability, discriminative ability and practice-based experiences of this instrument.

Methods: Scientific literature and practice-based experiences guided the development of the instrument. The instrument was tested in clinical practice by conducting structured interviews with informants of people with SPI(M)D without dementia (n=18), with questionable dementia (n=10) and with diagnosed dementia (n=10).

Results: The instrument comprised 45 items, categorized into 7 symptom domains. Results concerning validity and reliability were promising. Regarding discriminative ability, people with diagnosed dementia tended to show most changes and people without dementia least based on item scores, domain scores and total scores. Experiences from psychologists, psychological assistants and
informants were predominantly positive.

Conclusion: The first results suggest that this instrument can identify dementia-related changes in people with SPI(M)D. It can be implemented in intellectual disability care organizations, whereby it is recommended to further study reliability and discriminative ability.
Original languageDutch
Pages (from-to)94-116
Number of pages23
JournalNederlands Tijdschrift voor de Zorg aan mensen met verstandelijke beperkingen (NTZ)
Issue number3
Publication statusPublished - Sept-2023

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