Exploring effectiveness and effective components of self-management interventions for young people with chronic physical conditions: A systematic review

Marjolijn I Bal*, Jane N T Sattoe, Pepijn D D M Roelofs, Roland Bal, AnneLoes van Staa, Harald S Miedema

*Corresponding author for this work

Research output: Contribution to journalReview articleAcademicpeer-review

23 Citations (Scopus)

Abstract

OBJECTIVE: To systematically explore the effectiveness and effective components of self-management interventions.

METHODS: Study selection criteria were: Original articles in English published between 2003 and 2015; focusing on youth with chronic conditions; describing self-management interventions; with clear outcome measures; using RCT design. The random effects analysis was applied in which standardized mean differences per study were calculated.

RESULTS: 42 RCTs were included. Interventions focused on medical management, provided individually in clinical settings or at home by mono-disciplinary teams showed a trend in improving adherence. Interventions delivered individually at home by mono-disciplinary teams showed a trend in improving dealing with a chronic condition.

CONCLUSIONS AND PRACTICAL IMPLICATIONS: Adherence could be improved through interventions focused on medical management, provided individually in a clinical or home setting by a mono-disciplinary team. Interventions focused on dealing with a chronic condition might be provided individually, through telemedicine programs facilitating peer-support. These intervention elements seemed effective irrespective of diagnosis, and may therefore act as good starting points for further research into and for improvement of self-management support for youth with chronic conditions in pediatric care. Results underlined the need to systematically develop and evaluate self-management interventions, since this may provide more evidence for effectiveness and effective intervention components.

Original languageEnglish
Pages (from-to)1293-1309
Number of pages17
JournalPatient Education and Counseling
Volume99
Issue number8
DOIs
Publication statusPublished - Aug-2016
Externally publishedYes

Keywords

  • Chronic Disease/rehabilitation
  • Communication
  • Delivery of Health Care
  • Disabled Persons
  • Humans
  • Outcome Assessment, Health Care
  • Patient Education as Topic/methods
  • Program Evaluation
  • Quality of Life
  • Self Care/methods
  • Self Efficacy

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