TY - JOUR
T1 - Mind the gap
T2 - Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal
AU - Rotulo, Arianna
AU - Kondilis, Elias
AU - Thwe, Thaint
AU - Gautam, Sanju
AU - Torcu, Özgün
AU - Vera-Montoya, Maira
AU - Marjan, Sharika
AU - Gazi, Md Ismail
AU - Putri, Alifa Syamantha
AU - Hasan, Rubyath Binte
AU - Mone, Fabia Hannan
AU - Rodríguez-Castillo, Kenya
AU - Tabassum, Arifa
AU - Parcharidi, Zoi
AU - Sharma, Beverly
AU - Islam, Fahmida
AU - Amoo, Babatunde
AU - Lemke, Lea
AU - Gallo, Valentina
N1 - Copyright: © 2023 Rotulo et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
PY - 2023/4/21
Y1 - 2023/4/21
N2 - Data transparency has played a key role in this pandemic. The aim of this paper is to map COVID-19 data availability and accessibility, and to rate their transparency and credibility in selected countries, by the source of information. This is used to identify knowledge gaps, and to analyse policy implications. The availability of a number of COVID-19 metrics (incidence, mortality, number of people tested, test positive rate, number of patients hospitalised, number of patients discharged, the proportion of population who received at least one vaccine, the proportion of population fully vaccinated) was ascertained from selected countries for the full population, and for few of stratification variables (age, sex, ethnicity, socio-economic status) and subgroups (residents in nursing homes, inmates, students, healthcare and social workers, and residents in refugee camps). Nine countries were included: Bangladesh, Indonesia, Iran, Nigeria, Turkey, Panama, Greece, the UK, and the Netherlands. All countries reported periodically most of COVID-19 metrics on the total population. Data were more frequently broken down by age, sex, and region than by ethnic group or socio-economic status. Data on COVID-19 is partially available for special groups. This exercise highlighted the importance of a transparent and detailed reporting of COVID-19 related variables. The more data is publicly available the more transparency, accountability, and democratisation of the research process is enabled, allowing a sound evidence-based analysis of the consequences of health policies.
AB - Data transparency has played a key role in this pandemic. The aim of this paper is to map COVID-19 data availability and accessibility, and to rate their transparency and credibility in selected countries, by the source of information. This is used to identify knowledge gaps, and to analyse policy implications. The availability of a number of COVID-19 metrics (incidence, mortality, number of people tested, test positive rate, number of patients hospitalised, number of patients discharged, the proportion of population who received at least one vaccine, the proportion of population fully vaccinated) was ascertained from selected countries for the full population, and for few of stratification variables (age, sex, ethnicity, socio-economic status) and subgroups (residents in nursing homes, inmates, students, healthcare and social workers, and residents in refugee camps). Nine countries were included: Bangladesh, Indonesia, Iran, Nigeria, Turkey, Panama, Greece, the UK, and the Netherlands. All countries reported periodically most of COVID-19 metrics on the total population. Data were more frequently broken down by age, sex, and region than by ethnic group or socio-economic status. Data on COVID-19 is partially available for special groups. This exercise highlighted the importance of a transparent and detailed reporting of COVID-19 related variables. The more data is publicly available the more transparency, accountability, and democratisation of the research process is enabled, allowing a sound evidence-based analysis of the consequences of health policies.
KW - COVID
U2 - 10.1371/journal.pgph.0001148
DO - 10.1371/journal.pgph.0001148
M3 - Article
C2 - 37083552
SN - 2767-3375
VL - 3
JO - PLoS Global Public Health
JF - PLoS Global Public Health
IS - 4
M1 - e0001148
ER -