TY - JOUR
T1 - Participation in People Living With Spinal Cord Injury in Switzerland
T2 - Conference of the International-Spinal-Cord-Society
AU - SwiSCI Study Grp
AU - Gross-Hemmi, Mirja H.
AU - Post, Marcel W. M.
AU - Bienert, Stefanie
AU - Chamberlain, Jonviea D.
AU - Hug, Kerstin
AU - Jordan, Xavier
AU - Scheel-Sailer, Anke
AU - Weiss, Annette
AU - Brinkhof, Martin W. G.
AU - Reynard, Fabienne
AU - Baumberger, Michael
AU - Gmunder, Hans Peter
AU - Curt, Armin
AU - Schubert, Martin
AU - Hund-Georgiadis, Margret
AU - Joggi, Daniel
AU - Landolt, Hardy
AU - Munzel, Nadja
AU - Brach, Mirjam
AU - Stucki, Gerold
AU - Fekete, Christine
N1 - Copyright © 2019 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.
PY - 2019/10
Y1 - 2019/10
N2 - Objective: To describe different domains of participation such as productive, leisure and social activities and describe sociodemographic and spinal cord injury (SCI)-related characteristics that are associated with participation in these domains in a large sample of community-dwelling individuals with SCI in Switzerland.Design: Cross-sectional population-based survey within the Swiss Spinal Cord Injury Cohort Study. Participation in major life domains was measured by the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation). Univariable unconditional analysis and unbiased recursive partitioning were used to identify the predominant associations of sociodemographic and SCI-related characteristics with multiple dimensions of participation.Setting: Community.Participants: Swiss residents aged 16 years or older and living with traumatic or nontraumatic SCI (N=1549).Interventions: Not applicable.Main Outcome Measure: The USER-Participation, a 32-item self-report questionnaire with 3 scales (Frequency, Restrictions, and Satisfaction) to assess key domains of participation (productive, leisure, social).Results: Frequency (median 34.5 out of 100) in productive, outdoor leisure, and social activities was reduced with distinctive perceived restrictions in work and education, sports, and partner relationships. Domestic leisure activities (65.4%) and maintaining social relationships (76.1%) were those activities most often performed and with least perceived restrictions. Participants were generally satisfied with their current daily life activities. Lower scores across all participation scales were associated with more severe SCI, higher age, being female, not having a partner, and lower level of education.Conclusions: This study provides a thorough analysis of participation in major life domains of individuals with SCI in Switzerland. Different risk groups for reduced levels in participation in productive, leisure, and social activities were identified. This population-based evidence is instrumental to the better targeting of rehabilitation and policy interventions that aim to improve community participation. (C) 2019 by the American Congress of Rehabilitation Medicine
AB - Objective: To describe different domains of participation such as productive, leisure and social activities and describe sociodemographic and spinal cord injury (SCI)-related characteristics that are associated with participation in these domains in a large sample of community-dwelling individuals with SCI in Switzerland.Design: Cross-sectional population-based survey within the Swiss Spinal Cord Injury Cohort Study. Participation in major life domains was measured by the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation). Univariable unconditional analysis and unbiased recursive partitioning were used to identify the predominant associations of sociodemographic and SCI-related characteristics with multiple dimensions of participation.Setting: Community.Participants: Swiss residents aged 16 years or older and living with traumatic or nontraumatic SCI (N=1549).Interventions: Not applicable.Main Outcome Measure: The USER-Participation, a 32-item self-report questionnaire with 3 scales (Frequency, Restrictions, and Satisfaction) to assess key domains of participation (productive, leisure, social).Results: Frequency (median 34.5 out of 100) in productive, outdoor leisure, and social activities was reduced with distinctive perceived restrictions in work and education, sports, and partner relationships. Domestic leisure activities (65.4%) and maintaining social relationships (76.1%) were those activities most often performed and with least perceived restrictions. Participants were generally satisfied with their current daily life activities. Lower scores across all participation scales were associated with more severe SCI, higher age, being female, not having a partner, and lower level of education.Conclusions: This study provides a thorough analysis of participation in major life domains of individuals with SCI in Switzerland. Different risk groups for reduced levels in participation in productive, leisure, and social activities were identified. This population-based evidence is instrumental to the better targeting of rehabilitation and policy interventions that aim to improve community participation. (C) 2019 by the American Congress of Rehabilitation Medicine
KW - QUALITY-OF-LIFE
KW - UTRECHT SCALE
KW - SOCIAL-PARTICIPATION
KW - REHABILITATION-PARTICIPATION
KW - ACTIVITIES SCREENER
KW - ICF MEASURE
KW - DISABILITY
KW - OUTCOMES
KW - HEALTH
KW - AGE
U2 - 10.1016/j.apmr.2019.03.018
DO - 10.1016/j.apmr.2019.03.018
M3 - Article
C2 - 31026462
SN - 0003-9993
VL - 100
SP - 1894
EP - 1906
JO - Archives of Physical Medicine and Rehabilitation
JF - Archives of Physical Medicine and Rehabilitation
IS - 10
Y2 - 24 October 2017 through 26 October 2017
ER -