Participation in questionnaire studies among couples affected by breast cancer

Helene Terp*, Nina Rottmann, Pia Veldt Larsen, Mariet Hagedoorn, Henrik Flyger, Niels Kroman, Christoffer Johansen, Susanne Dalton, Dorte Gilsa Hansen

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

10 Citations (Scopus)

Abstract

Participation bias may be a problem in couple-based psychosocial studies. Therefore, it is important to investigate the characteristics associated with participation. The aim of this study was to analyze whether participation in a longitudinal psychosocial questionnaire study among couples affected by breast cancer was associated with socioeconomic, breast cancer-specific, and other health-related characteristics of the patients and partners.

The analyzes are based on 2254 couples who were invited to participate in a nationwide survey on psychosocial adjustment among couples dealing with breast cancer. Participating couples (N = 792) were compared with non-participating couples (N = 1462) with regard to socioeconomic and health-related characteristics obtained from nationwide clinical and administrative registers.

Associations were seen between various socioeconomic variables and couple participation. The patient characteristics older age (OR = 0.15 [95 % CI = 0.07-0.55]), low education (OR = 1.95 [95 % CI = 1.46-2.68]), disability pension (OR = 0.59 [95 % CI = 0.39-0.55]), or non-western ethnicity (OR = 0.36 [95 % CI = 0.15-0.82]) reduced couple participation. The partner characteristics older age (OR = 0.23 [95 % CI = 0.15-0.43]), low education (OR = 1.67 [95 % CI = 1.25-2.22]), receiving disability pension (OR = 0.46 [95 % CI = 0.25-0.82]), non-western ethnicity (OR = 0.17 [95 % CI = 0.06-0.49]), or high morbidity (OR = 0.76 [95 % CI = 0.60-0.96]) also reduced couple participation. Furthermore, couples with low income (OR = 1.49 [95 % CI = 1.16-1.95]) had reduced participation. No associations were found between couple participation and breast cancer-related variables.

Socioeconomic characteristics of patients and partners, and morbidity of partners may influence participation in couple-based psychosocial breast cancer research. Breast cancer-related characteristics do not seem to influence participation.

Original languageEnglish
Pages (from-to)1907-1916
Number of pages10
JournalSupportive Care in Cancer
Volume23
Issue number7
DOIs
Publication statusPublished - Jul-2015

Keywords

  • Cancer
  • Oncology
  • Couples and breast cancer
  • Participation
  • Psychosocial
  • Socioeconomic
  • PSYCHOLOGICAL DISTRESS
  • WOMEN
  • PARTNERS
  • INTERVENTION
  • RECRUITMENT
  • SURVIVORS
  • STRESS
  • HEALTH
  • COHORT
  • TRIAL

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