Patients' perspectives on quality of care for chronic hand eczema: a qualitative study

Manon M Sloot; Laura Loman; Geertruida L E Romeijn; Fieke M Rosenberg; Bernd W M Arents; Marie L A Schuttelaar

doi:10.1111/cod.14020

Patients' perspectives on quality of care for chronic hand eczema: a qualitative study

Manon M Sloot, Laura Loman, Geertruida L E Romeijn, Fieke M Rosenberg, Bernd W M Arents, Marie L A Schuttelaar^*

^*Corresponding author for this work

Public Health Research (PHR)

Research output: Contribution to journal › Article › Academic › peer-review

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Abstract

BACKGROUND: Hand eczema (HE) has a significant impact on quality of life and work related activities. Little is known about the patients' perspectives on quality of care for HE.

OBJECTIVES: To evaluate the patient perspective of the HE care process in a tertiary referral center.

METHODS: Qualitative, semi-structured focus groups were carried out and recorded, transcribed and analysed by an inductive-deductive thematic approach.

RESULTS: Fifteen patients participated in four focus groups. Time and attention, together with being listened to and understood by the health care professional, were the most important aspects of care for HE mentioned by participants. Other important insights included: Diagnoses, causes and follow-up of HE were not always clear to the participant; more psychosocial support was needed; participants experienced frequent changes in doctors. Information provided by nurses was valuable, but more individualized advice was needed.

CONCLUSIONS: In order to better meet the needs of patients, more explanation should be given about the causes of HE and final diagnosis. Besides focusing on the treatment, it is also important to focus on its impact on the patient and options for psychosocial and peer support should be discussed. Furthermore, the specialized nurse as part of integrated care was emphasized. This article is protected by copyright. All rights reserved.

Original language	English
Pages (from-to)	204-212
Number of pages	9
Journal	Contact Dermatitis
Volume	86
Issue number	3
Early online date	6-Dec-2021
DOIs	https://doi.org/10.1111/cod.14020
Publication status	Published - Mar-2022

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@article{dbc0842429e3485c92beea0107f96893,

title = "Patients' perspectives on quality of care for chronic hand eczema: a qualitative study",

abstract = "BACKGROUND: Hand eczema (HE) has a significant impact on quality of life and work related activities. Little is known about the patients' perspectives on quality of care for HE.OBJECTIVES: To evaluate the patient perspective of the HE care process in a tertiary referral center.METHODS: Qualitative, semi-structured focus groups were carried out and recorded, transcribed and analysed by an inductive-deductive thematic approach.RESULTS: Fifteen patients participated in four focus groups. Time and attention, together with being listened to and understood by the health care professional, were the most important aspects of care for HE mentioned by participants. Other important insights included: Diagnoses, causes and follow-up of HE were not always clear to the participant; more psychosocial support was needed; participants experienced frequent changes in doctors. Information provided by nurses was valuable, but more individualized advice was needed.CONCLUSIONS: In order to better meet the needs of patients, more explanation should be given about the causes of HE and final diagnosis. Besides focusing on the treatment, it is also important to focus on its impact on the patient and options for psychosocial and peer support should be discussed. Furthermore, the specialized nurse as part of integrated care was emphasized. This article is protected by copyright. All rights reserved.",

author = "Sloot, {Manon M} and Laura Loman and Romeijn, {Geertruida L E} and Rosenberg, {Fieke M} and Arents, {Bernd W M} and Schuttelaar, {Marie L A}",

year = "2022",

month = mar,

doi = "10.1111/cod.14020",

language = "English",

volume = "86",

pages = "204--212",

journal = "Contact Dermatitis",

issn = "0105-1873",

publisher = "Wiley",

number = "3",

}

TY - JOUR

T1 - Patients' perspectives on quality of care for chronic hand eczema

T2 - a qualitative study

AU - Sloot, Manon M

AU - Loman, Laura

AU - Romeijn, Geertruida L E

AU - Rosenberg, Fieke M

AU - Arents, Bernd W M

AU - Schuttelaar, Marie L A

PY - 2022/3

Y1 - 2022/3

N2 - BACKGROUND: Hand eczema (HE) has a significant impact on quality of life and work related activities. Little is known about the patients' perspectives on quality of care for HE.OBJECTIVES: To evaluate the patient perspective of the HE care process in a tertiary referral center.METHODS: Qualitative, semi-structured focus groups were carried out and recorded, transcribed and analysed by an inductive-deductive thematic approach.RESULTS: Fifteen patients participated in four focus groups. Time and attention, together with being listened to and understood by the health care professional, were the most important aspects of care for HE mentioned by participants. Other important insights included: Diagnoses, causes and follow-up of HE were not always clear to the participant; more psychosocial support was needed; participants experienced frequent changes in doctors. Information provided by nurses was valuable, but more individualized advice was needed.CONCLUSIONS: In order to better meet the needs of patients, more explanation should be given about the causes of HE and final diagnosis. Besides focusing on the treatment, it is also important to focus on its impact on the patient and options for psychosocial and peer support should be discussed. Furthermore, the specialized nurse as part of integrated care was emphasized. This article is protected by copyright. All rights reserved.

AB - BACKGROUND: Hand eczema (HE) has a significant impact on quality of life and work related activities. Little is known about the patients' perspectives on quality of care for HE.OBJECTIVES: To evaluate the patient perspective of the HE care process in a tertiary referral center.METHODS: Qualitative, semi-structured focus groups were carried out and recorded, transcribed and analysed by an inductive-deductive thematic approach.RESULTS: Fifteen patients participated in four focus groups. Time and attention, together with being listened to and understood by the health care professional, were the most important aspects of care for HE mentioned by participants. Other important insights included: Diagnoses, causes and follow-up of HE were not always clear to the participant; more psychosocial support was needed; participants experienced frequent changes in doctors. Information provided by nurses was valuable, but more individualized advice was needed.CONCLUSIONS: In order to better meet the needs of patients, more explanation should be given about the causes of HE and final diagnosis. Besides focusing on the treatment, it is also important to focus on its impact on the patient and options for psychosocial and peer support should be discussed. Furthermore, the specialized nurse as part of integrated care was emphasized. This article is protected by copyright. All rights reserved.

U2 - 10.1111/cod.14020

DO - 10.1111/cod.14020

M3 - Article

C2 - 34871458

SN - 0105-1873

VL - 86

SP - 204

EP - 212

JO - Contact Dermatitis

JF - Contact Dermatitis

IS - 3

ER -

Patients' perspectives on quality of care for chronic hand eczema: a qualitative study

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