Prevalence and psychosocial impact of lower urinary tract symptoms in patients with Duchenne muscular dystrophy

Evaline van Wijk*, Bert J. Messelink, Lily Heijnen, Imelda J. M. de Groot

*Corresponding author for this work

    Research output: Contribution to journalArticleAcademicpeer-review

    17 Citations (Scopus)

    Abstract

    Patients with Duchenne muscular dystrophy (DMD) frequently report lower urinary tract symptoms at the outpatient rehabilitation clinic. The purpose of this study was to determine the prevalence of lower urinary tract symptoms in the Dutch male DMD population and their effect on quality of life. A postal questionnaire was sent to members of Dutch DMD patient organisations. 199 male patients with confirmed DMD and over the age of 3 years were included. 170/199 (85%) patients reported one or more lower urinary tract symptoms. Generally, post micturition dribble, straining and feeling of incomplete emptying were most frequently mentioned. 42% of patients (range 18-76%) experienced the symptoms as a problem. in 49/170 (29%) patients, it reduced quality of life. In conclusion, lower urinary tract symptoms in DMD patients are under reported and under diagnosed. However. the vast majority of male DMD patients with symptoms experience them as a problem, often reducing quality of life. (C) 2009 Published by Elsevier B.V.

    Original languageEnglish
    Pages (from-to)754-758
    Number of pages5
    JournalNeuromuscular disorders
    Volume19
    Issue number11
    DOIs
    Publication statusPublished - Nov-2009

    Keywords

    • Duchenne muscular dystrophy (DMD)
    • Urinary incontinence
    • Lower urinary tract symptoms (LUTS), Bladder dysfunction
    • QUALITY-OF-LIFE
    • SPINA-BIFIDA
    • INCONTINENCE
    • DYSFUNCTION
    • CONTINENCE
    • CHILDREN
    • PEOPLE

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