Psychosocial and medical determinants of long-term patient outcomes: A specific focus on patients after kidney transplantation and with haemophilia

Lucia Prihodová

    Research output: ThesisThesis fully internal (DIV)

    1790 Downloads (Pure)

    Abstract

    From the time of diagnosis, patients with a chronic condition have to deal with the many consequences of their illness and have to adapt to a new lifestyle and to changes in their health-related quality of life (HRQoL). This is particularly difficult in patients for whom the most effective treatment is associated with significant side effects, such as immunosuppressive treatment in patients after kidney transplantation (KT), or for whom treatment is not always available, such as prophylactic treatment in patients with haemophilia. The aim of this thesis was to explore the associations between HRQoL, medication-related factors and patient outcomes in these two chronic disease groups – patients after KT and patients with bleeding disorders. Additionally, we explored specific issues in each group: psychosocial factors determining HRQoL, adherence to immunosuppressive treatment and social participation in patients after KT, and access to treatment and medical services in patients with haemophilia throughout Europe.
    Translated title of the contributionPsychosocial and medical determinants of long-term patient outcomes: A specific focus on patients after kidney transplantation and with haemophilia
    Original languageEnglish
    QualificationDoctor of Philosophy
    Awarding Institution
    • University of Groningen
    Supervisors/Advisors
    • Groothoff, Johan, Supervisor
    • van Dijk, Jitze, Co-supervisor
    • Nagyova-Rajnicova, Iveta, Co-supervisor, External person
    • Rosenberger, Jaroslav, Co-supervisor
    Award date29-Sep-2014
    Place of Publication[S.l.]
    Publisher
    Print ISBNs978-90-367-7142-9
    Electronic ISBNs978-90-367-7141-2
    Publication statusPublished - 2014

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