Research Ethics 2.0: New Perspectives on Norms, Values, and Integrity in Genomic Research in Times of Even Scarcer Resources

Caroline Brall*, Els Maeckelberghe, Rouven Porz, Jihad Makhoul, Peter Schröder-Bäck

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

7 Citations (Scopus)
347 Downloads (Pure)

Abstract

Research ethics anew gained importance due to the changing scientific landscape and increasing demands and competition in the academic field. These changes are further exaggerated because of scarce(r) resources in some countries on the one hand and advances in genomics on the other. In this paper, we will highlight the current challenges thereof to scientific integrity. To mark key developments in research ethics, we will distinguish between what we call research ethics 1.0 and research ethics 2.0. Whereas research ethics 1.0 focuses on individual integrity and informed consent, research ethics 2.0 entails social scientific integrity within a broader perspective of a research network. This research network can be regarded as a network of responsibilities in which every stakeholder involved has to jointly meet the ethical challenges posed to research. (C) 2017 S. Karger AG, Basel

Original languageEnglish
Pages (from-to)27-35
Number of pages9
JournalPublic Health Genomics
Volume20
Issue number1
Early online date14-Mar-2017
DOIs
Publication statusPublished - Jun-2017

Keywords

  • Research ethics
  • Scientific integrity
  • Research network
  • Network of responsibility
  • INFORMED-CONSENT
  • CITIZEN SCIENCE
  • AUSTERITY

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