Screening for psychosocial distress in patients with long-term home parenteral nutrition

A. M. C. Roskott; G. Huisman-de Waal; G. J. Wanten; C. Jonkers-Schuitema; M. J. Serlie; J. P. Baxter; J. E. H. M. Hoekstra-Weebers

doi:10.1016/j.clnu.2012.08.023

Screening for psychosocial distress in patients with long-term home parenteral nutrition

A. M. C. Roskott^*, G. Huisman-de Waal, G. J. Wanten, C. Jonkers-Schuitema, M. J. Serlie, J. P. Baxter, J. E. H. M. Hoekstra-Weebers

^*Corresponding author for this work

Health Psychology Research (HPR)

Research output: Contribution to journal › Article › Academic › peer-review

19 Citations (Scopus)

Abstract

Background & aims: Long-term home parenteral nutrition (HPN) may cause distress and negatively affect quality of life (QoL). The HPN version of the Distress Thermometer and Problem List (DT/PL) was developed to evaluate distress during HPN. This study validates the DT/PL, examines referral wish for additional care, assesses opinions on the DT/PL, and studies risk factors for distress and referral wish.

Methods: Dutch and Scottish patients completed questions on socio-demographic and HPN-related general characteristics, the DT/PL, referral wish, the Hospital Anxiety and Depression Scale, and opinions on the DT.

Results: The HPN version of the DT/PL seemed valid and the PL sufficiently reliable. Cut-off score appeared to be 6. Consequently, 45% of patients were diagnosed as clinically distressed. Fifty-three percent had a referral wish. Emotional and physical problems were most strongly associated with distress. Not being able to work related to elevated distress. Female gender and co-morbidity related to referral wish. Opinions on the DT were generally positive.

Conclusion: The DT/PL appears to be a good instrument to regularly gain insight into distress and referral wish in HPN patients. Use of the DT/PL facilitates support to patients who most need and want it, thus improving quality of care and QoL. (C) 2012 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.

Original language	English
Pages (from-to)	396-403
Number of pages	8
Journal	Clinical Nutrition
Volume	32
Issue number	3
DOIs	https://doi.org/10.1016/j.clnu.2012.08.023
Publication status	Published - Jun-2013

Keywords

Home parenteral nutrition
Clinical distress
Quality of life
Intestinal failure
Intestinal failure associated complications
Quality of life instruments
Distress thermometer
QUALITY-OF-LIFE
HOSPITAL ANXIETY
DEPRESSION SCALE
THERMOMETER
IMPACT

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title = "Screening for psychosocial distress in patients with long-term home parenteral nutrition",

abstract = "Background & aims: Long-term home parenteral nutrition (HPN) may cause distress and negatively affect quality of life (QoL). The HPN version of the Distress Thermometer and Problem List (DT/PL) was developed to evaluate distress during HPN. This study validates the DT/PL, examines referral wish for additional care, assesses opinions on the DT/PL, and studies risk factors for distress and referral wish.Methods: Dutch and Scottish patients completed questions on socio-demographic and HPN-related general characteristics, the DT/PL, referral wish, the Hospital Anxiety and Depression Scale, and opinions on the DT.Results: The HPN version of the DT/PL seemed valid and the PL sufficiently reliable. Cut-off score appeared to be 6. Consequently, 45% of patients were diagnosed as clinically distressed. Fifty-three percent had a referral wish. Emotional and physical problems were most strongly associated with distress. Not being able to work related to elevated distress. Female gender and co-morbidity related to referral wish. Opinions on the DT were generally positive.Conclusion: The DT/PL appears to be a good instrument to regularly gain insight into distress and referral wish in HPN patients. Use of the DT/PL facilitates support to patients who most need and want it, thus improving quality of care and QoL. (C) 2012 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.",

keywords = "Home parenteral nutrition, Clinical distress, Quality of life, Intestinal failure, Intestinal failure associated complications, Quality of life instruments, Distress thermometer, QUALITY-OF-LIFE, HOSPITAL ANXIETY, DEPRESSION SCALE, THERMOMETER, IMPACT",

author = "Roskott, {A. M. C.} and {Huisman-de Waal}, G. and Wanten, {G. J.} and C. Jonkers-Schuitema and Serlie, {M. J.} and Baxter, {J. P.} and Hoekstra-Weebers, {J. E. H. M.}",

year = "2013",

month = jun,

doi = "10.1016/j.clnu.2012.08.023",

language = "English",

volume = "32",

pages = "396--403",

journal = "Clinical Nutrition",

issn = "0261-5614",

publisher = "Churchill Livingstone",

number = "3",

}

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T1 - Screening for psychosocial distress in patients with long-term home parenteral nutrition

AU - Roskott, A. M. C.

AU - Huisman-de Waal, G.

AU - Wanten, G. J.

AU - Jonkers-Schuitema, C.

AU - Serlie, M. J.

AU - Baxter, J. P.

AU - Hoekstra-Weebers, J. E. H. M.

PY - 2013/6

Y1 - 2013/6

N2 - Background & aims: Long-term home parenteral nutrition (HPN) may cause distress and negatively affect quality of life (QoL). The HPN version of the Distress Thermometer and Problem List (DT/PL) was developed to evaluate distress during HPN. This study validates the DT/PL, examines referral wish for additional care, assesses opinions on the DT/PL, and studies risk factors for distress and referral wish.Methods: Dutch and Scottish patients completed questions on socio-demographic and HPN-related general characteristics, the DT/PL, referral wish, the Hospital Anxiety and Depression Scale, and opinions on the DT.Results: The HPN version of the DT/PL seemed valid and the PL sufficiently reliable. Cut-off score appeared to be 6. Consequently, 45% of patients were diagnosed as clinically distressed. Fifty-three percent had a referral wish. Emotional and physical problems were most strongly associated with distress. Not being able to work related to elevated distress. Female gender and co-morbidity related to referral wish. Opinions on the DT were generally positive.Conclusion: The DT/PL appears to be a good instrument to regularly gain insight into distress and referral wish in HPN patients. Use of the DT/PL facilitates support to patients who most need and want it, thus improving quality of care and QoL. (C) 2012 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.

AB - Background & aims: Long-term home parenteral nutrition (HPN) may cause distress and negatively affect quality of life (QoL). The HPN version of the Distress Thermometer and Problem List (DT/PL) was developed to evaluate distress during HPN. This study validates the DT/PL, examines referral wish for additional care, assesses opinions on the DT/PL, and studies risk factors for distress and referral wish.Methods: Dutch and Scottish patients completed questions on socio-demographic and HPN-related general characteristics, the DT/PL, referral wish, the Hospital Anxiety and Depression Scale, and opinions on the DT.Results: The HPN version of the DT/PL seemed valid and the PL sufficiently reliable. Cut-off score appeared to be 6. Consequently, 45% of patients were diagnosed as clinically distressed. Fifty-three percent had a referral wish. Emotional and physical problems were most strongly associated with distress. Not being able to work related to elevated distress. Female gender and co-morbidity related to referral wish. Opinions on the DT were generally positive.Conclusion: The DT/PL appears to be a good instrument to regularly gain insight into distress and referral wish in HPN patients. Use of the DT/PL facilitates support to patients who most need and want it, thus improving quality of care and QoL. (C) 2012 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.

KW - Home parenteral nutrition

KW - Clinical distress

KW - Quality of life

KW - Intestinal failure

KW - Intestinal failure associated complications

KW - Quality of life instruments

KW - Distress thermometer

KW - QUALITY-OF-LIFE

KW - HOSPITAL ANXIETY

KW - DEPRESSION SCALE

KW - THERMOMETER

KW - IMPACT

U2 - 10.1016/j.clnu.2012.08.023

DO - 10.1016/j.clnu.2012.08.023

M3 - Article

SN - 0261-5614

VL - 32

SP - 396

EP - 403

JO - Clinical Nutrition

JF - Clinical Nutrition

IS - 3

ER -

Screening for psychosocial distress in patients with long-term home parenteral nutrition

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Keywords

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