TY - JOUR
T1 - Screening Instrument for Dysphagia in people with an Intellectual Disability (SD-ID): Quick and reliable screening by caregivers
AU - van der Woude, T. S.
AU - Schüller-Korevaar, R. M.
AU - Ulgiati, A. M.
AU - Pavlis-Maldonado, G. J.
AU - Hovenkamp-Hermelink, J. H.M.
AU - Dekker, A. D.
N1 - Publisher Copyright:
© 2023, The Author(s).
PY - 2023/11/1
Y1 - 2023/11/1
N2 - Background and Aim: Timely diagnosis of dysphagia is important for people with an intellectual disability. Periodic screening of each individual by speech-language therapists is barely feasible with respect to limited resources. Therefore, preselection of individuals with an increased dysphagia risk through screening by caregivers is crucial.Objective: This study aimed to develop the novel Screening instrument for Dysphagia for people with an Intellectual Disability (SD-ID).Methods: The SD-ID was developed, validated and optimised in two rounds. Version 3, consisting of nine risk factors and 20 items concerning eating/drinking behaviour, was thoroughly studied for feasibility, concurrent validity and reliability, and then optimised.Outcomes and Results: The SD-ID (version 3) was filled out in an average of four minutes (feasibility). A strong positive association was found between scores on SD-ID and Dysphagia Disorder Survey (concurrent validity). Test-retest and interrater reliability were very good. Two additional risk factors were added and two items removed to yield the final version 4. The most optimal cut-off score appeared to be either 4 or 5.Conclusions and Implications: The SD-ID is a reliable instrument to screen for an increased risk of dysphagia in people with an intellectual disability. Ideally it is part of a cyclic work process: Screening with SD-ID (step 1), diagnostic work-up if necessary (step 2), recommendations (step 3), and evaluation (step 4).
AB - Background and Aim: Timely diagnosis of dysphagia is important for people with an intellectual disability. Periodic screening of each individual by speech-language therapists is barely feasible with respect to limited resources. Therefore, preselection of individuals with an increased dysphagia risk through screening by caregivers is crucial.Objective: This study aimed to develop the novel Screening instrument for Dysphagia for people with an Intellectual Disability (SD-ID).Methods: The SD-ID was developed, validated and optimised in two rounds. Version 3, consisting of nine risk factors and 20 items concerning eating/drinking behaviour, was thoroughly studied for feasibility, concurrent validity and reliability, and then optimised.Outcomes and Results: The SD-ID (version 3) was filled out in an average of four minutes (feasibility). A strong positive association was found between scores on SD-ID and Dysphagia Disorder Survey (concurrent validity). Test-retest and interrater reliability were very good. Two additional risk factors were added and two items removed to yield the final version 4. The most optimal cut-off score appeared to be either 4 or 5.Conclusions and Implications: The SD-ID is a reliable instrument to screen for an increased risk of dysphagia in people with an intellectual disability. Ideally it is part of a cyclic work process: Screening with SD-ID (step 1), diagnostic work-up if necessary (step 2), recommendations (step 3), and evaluation (step 4).
KW - Dysphagia
KW - Intellectual Disability
KW - Reliability Study
KW - Screening Instrument
KW - Validity Study
UR - http://www.scopus.com/inward/record.url?scp=85175419416&partnerID=8YFLogxK
U2 - 10.1007/s10882-023-09938-0
DO - 10.1007/s10882-023-09938-0
M3 - Article
AN - SCOPUS:85175419416
SN - 1573-3580
JO - Journal of developmental and physical disabilities
JF - Journal of developmental and physical disabilities
ER -