Shared medical appointments improve QOL in neuromuscular patients A randomized controlled trial

Femke Marie Seesing*, Gea Drost, Johannes Groenewoud, Gert Jan van der Wilt, Baziel G. M. van Engelen

*Corresponding author for this work

    Research output: Contribution to journalArticleAcademicpeer-review

    13 Citations (Scopus)

    Abstract

    Objective: To systematically study the effects of shared medical appointments (SMAs) compared with individual appointments for patients with a chronic neuromuscular disorder and their partners.

    Methods: In this randomized controlled trial with a follow-up of 6 months, we included patients with a chronic neuromuscular disorder and their partners. Participants were randomly allocated to an SMA or an individual outpatient appointment. The primary outcome measure was patients' health-related quality of life (QOL) (36-Item Short Form Health Survey). Secondary outcome measures included self-efficacy, social support, patient and partner satisfaction with the appointment, and time available per patient.

    Results: Two hundred seventy-two patients and 149 partners were included. Health-related QOL showed greater improvement in patients who had attended an SMA (mean difference 2.8 points, 95% confidence interval 0.0-5.7, p = 0.05). Secondary outcomes showed small improvements in the control group for satisfaction with the appointment (p = 0.01). Neurologists spent less time per patient during the SMAs: mean 16 minutes (range 11-30) vs 25 minutes (range 20-30) for individual appointments.

    Conclusions: This study provides evidence that SMAs can improve aspects of QOL of patients with a chronic neuromuscular disorder. This could result in an alternative to individual appointments and improvements in both effectiveness and efficiency. Further research to optimize SMAs and to identify critical success factors seems warranted. These data extend evidence on SMAs for neurologic patients.

    Classification of evidence: This study provides Class III evidence that for patients with chronic neuromuscular disorders, SMAs improve QOL as compared with individual medical appointments.

    Original languageEnglish
    Pages (from-to)240-246
    Number of pages7
    JournalNeurology
    Volume83
    Issue number3
    DOIs
    Publication statusPublished - 15-Jul-2014

    Keywords

    • QUALITY-OF-LIFE
    • CHRONIC CARE CLINICS
    • HEALTH-CARE
    • MYOTONIC-DYSTROPHY
    • DISEASE
    • IMPACT
    • MODEL
    • ORGANIZATION
    • VALIDATION
    • PARTNERS

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