The role of the family in intervention of infants at high risk of cerebral palsy: a systematic analysis

Tineke Dirks, Mijna Hadders-Algra*

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

66 Citations (Scopus)

Abstract

During the past two decades, awareness of the role of the family in the child's life has increased and the term 'family-centred services' (FCS) has been introduced to facilitate care for children with special needs and their families. It is, however, unclear how various early intervention programmes incorporate family involvement in service delivery. The present study systematically analyses the nature of family involvement in six frequently used early intervention programmes for infants at high risk of developmental disorders: neurodevelopmental treatment, treatment according to Vojta, Conductive Education, Infant Health and Development Program, Infant Behaviour Assessment and Intervention Program, and Coping with and Caring for infants with special needs - a family-centred programme (COPCA). The analysis shows that the role of the family is diverse: it varies from parent training to be a therapist without attention to family function (in Vojta) to the autonomous family that receives coaching (COPCA). The data suggest two trends over time: (1) from child-focused to family-focused orientation; and (2) from professionally directed guidance to coaching based on equal partnership.

Original languageEnglish
Pages (from-to)62-67
Number of pages6
JournalDevelopmental Medicine and Child Neurology
Volume53
DOIs
Publication statusPublished - Sept-2011

Keywords

  • RANDOMIZED CONTROLLED-TRIAL
  • PHYSICAL-THERAPY
  • CENTERED CARE
  • MOTOR
  • PARTICIPATION
  • DISABILITIES
  • CHILDREN
  • PROGRAM

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