Els Maeckelberghe

Zoekresultaten

• 2022

  Involving children and young people in paediatric research priority setting: a narrative review

  Postma, L., Luchtenberg, M. L., Verhagen, A. A. E. & Maeckelberghe, E. L., 25-nov.-2022, In: BMJ Paediatrics Open. 6, 1, 22 blz., e001610.

  Onderzoeksoutput › peer review

  Open Access

  Bestand
  13 Downloads (Pure)

• Lessons learned on sex, gender and sexual orientation in large-scale general population cohort studies.

  Ballering, A., Burke, S. M., Maeckelberghe, E. L. M. & Rosmalen, J., sep.-2022.

  Onderzoeksoutput: Poster › Academic

  Open Access

  Bestand
  10 Downloads (Pure)

• Motives for withdrawal of participation in biobanking and participants’ willingness to allow linkages of their data

  Broekstra, R., Aris-Meijer, J., Maeckelberghe, E. L. M., Stolk, R. & Otten, S., mrt.-2022, In: European Journal of Human Genetics. 30, blz. 367–377 11 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  1 Citaat (Scopus)

  17 Downloads (Pure)
• 2021

  A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?

  van den Heuvel, L. M., Maeckelberghe, E. L. M., Ploem, M. C. & Christiaans, I., 23-nov.-2021, In: Bmc medical ethics. 22, 7 blz., 155.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  22 Downloads (Pure)

• Breaking bad news: what parents would like you to know

  Brouwer, M. A., Maeckelberghe, E. L. M., van der Heide, A., Hein, I. M. & Verhagen, E. A. A. E., mrt.-2021, In: Archives of Disease in Childhood. 106, 3, blz. 276-281 6 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  14 Citaten (Scopus)

  59 Downloads (Pure)

• COVID-19: Opportunities for public health ethics?

  Maeckelberghe, E. L. M., jun.-2021, In: Journal of the Royal College of Physicians of Edinburgh. 51, S1, blz. 47-52 6 blz.

  Onderzoeksoutput › peer review

  Open Access

  Bestand
  3 Citaten (Scopus)

  113 Downloads (Pure)

• De geestelijk verzorger bestaat, maar waar is de ethicus?

  Maeckelberghe, E. L. M., 2021, In: Podium voor Bio-ethiek. 28, 1, blz. 22-26

  Onderzoeksoutput: Article › Professional

  Open Access

• Demographic and prosocial intrapersonal characteristics of biobank participants and refusers: the findings of a survey in the Netherlands

  Broekstra, R., Aris-Meijer, J., Maeckelberghe, E., Stolk, R. & Otten, S., jan.-2021, In: EJHG. 1, blz. 11-19 9 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  9 Citaten (Scopus)

  71 Downloads (Pure)

• Ethical implications of COVID-19: vulnerabilities in a global perspective

  Maeckelberghe, E., 9-nov.-2021, In: European Journal of Public Health. 31, Supplement_4, blz. iv50-iv53 4 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  2 Citaten (Scopus)

  15 Downloads (Pure)

• Ethics in Design and Implementation of Technologies for Workplace Health Promotion: A Call for Discussion

  Roossien, C., de Jong, M., Bonvanie - Lenferink, A. & Maeckelberghe, E. L. M., 20-aug.-2021, In: Frontiers in Digital Health. 3, 14 blz., 644539.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  49 Downloads (Pure)

• Ethisch commentaar: Ethisch verantwoord onderzoek naar een vaccin voor COVID-19: vragen bij ‘Human Challenge Studies’

  Maeckelberghe, E. L. M., 2021, In: Tijdschrift voor Gezondheidszorg & Ethiek (TGE). 31, 1, blz. 24-25

  Onderzoeksoutput: Article › Professional

  Open Access

  Bestand
  8 Downloads (Pure)

• Helpt artificiële intelligentie 13 bij ingrijpende besluitvorming door dokters?

  Hulscher, J. B. F., Kooi, E. M. W., Chorus, C., ten Broeke, A. & Maeckelberghe, E. L. M., 2021, In: Podium voor Bio-ethiek. 28, 3, blz. 13-18 6 blz.

  Onderzoeksoutput: Article › Professional

  Open Access

  Bestand
  1 Downloads (Pure)

• Knowledge, health beliefs and attitudes towards dementia and dementia risk reduction among descendants of people with dementia: a qualitative study using focus group discussions

  Vrijsen, J., Maeckelberghe, E. L. M., Broekstra, R., de Vries, J. J., Abu-Hanna, A., De Deyn, P. P., Voshaar, R. C. O., Reesink, F. E., Buskens, E., de Rooij, S. E. & Smidt, N., 7-jul.-2021, In: BMC Public Health. 21, 1, 10 blz., 1344.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  28 Downloads (Pure)

• The attitudes of healthy children and researchers towards the challenges of involving children in research: an exploratory study

  Postma, L., Luchtenberg, M., Verhagen, A. A. E. & Maeckelberghe, E. L. M., 14-mei-2021, In: Research involvement and engagement. 7, 1, 10 blz., 30.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  2 Citaten (Scopus)

  26 Downloads (Pure)

• Vaccineren: niet alleen een kwestie van tellen.

  Maeckelberghe, E. L. M., 2021, In: Woord en Dienst. 70, 5, blz. 12-13

  Onderzoeksoutput: Article › Professional
• 2020

  13.F. Skills building seminar: "There is never a dull moment in science". Designing engaging responsible conduct in research courses

  Maeckelberghe, E. & Brinzac, M., sep.-2020, In: European Journal of Public Health. 30, 2 blz.

  Onderzoeksoutput: Meeting Abstract › Academic

• 14.G. Workshop: Teaching ethics in public health and medicine - International experiences, concepts, challenges

  Koupil, I. & Maeckelberghe, E., sep.-2020, In: European Journal of Public Health. 30, 1 blz.

  Onderzoeksoutput: Meeting Abstract › Academic

• 25.G. Round table: Public health codes of ethical professional conduct for effective practice

  Rae, M. & Maeckelberghe, E., sep.-2020, In: European Journal of Public Health. 30, blz. V442-V442 1 blz.

  Onderzoeksoutput: Meeting Abstract › Academic

• Barriers in care for children with life-threatening conditions: a qualitative interview study in the Netherlands

  Brouwer, M., Maeckelberghe, E. L. M., van der Heide, A., Hein, I. & Verhagen, E., 28-jun.-2020, In: BMJ Open. 10, 6, blz. e035863 9 blz., e035863.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  5 Citaten (Scopus)

  56 Downloads (Pure)

• Covid-19: a Test for our Humanity

  Maeckelberghe, E. L. M. & Schröder-Bäck, P., 1-okt.-2020, In: European Journal of Public Health. 30, 5, blz. 852–853 2 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  5 Citaten (Scopus)

  23 Downloads (Pure)

• Health Self-Management Applications in the Work Environment: The Effects on Employee Autonomy

  Bonvanie, A., Broekhuis, M., Janssen, O., Maeckelberghe, E. & Wortmann, H., 17-jul.-2020, In: Frontiers in Digital Health. 2, 17 blz., 9.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  2 Citaten (Scopus)

  134 Downloads (Pure)

• 'I actually felt like I was a researcher myself.' On involving children in the analysis of qualitative paediatric research in the Netherlands

  Luchtenberg, M. L., Maeckelberghe, E. L. M. & Verhagen, A. E., 30-aug.-2020, In: BMJ Open. 10, 8, 10 blz., e034433.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  2 Citaten (Scopus)

  51 Downloads (Pure)

• Motives of contributing personal data for health research: (non-)participation in a Dutch biobank

  Broekstra, R., Maeckelberghe, E. L. M., Aris-Meijer, J. L., Stolk, R. P. & Otten, S., 25-jul.-2020, In: Bmc medical ethics. 21, 1, blz. 62-73 11 blz., 62.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  4 Citaten (Scopus)

  110 Downloads (Pure)

• Pediatric Brain Tumors: Narrating Suffering and End-of-Life Decisionmaking

  Brouwer, M., Maeckelberghe, E., Brincke, H-J. T., Meulenbeek-Ten Brincke, M. & Verhagen, E., jul.-2020, In: Cambridge Quarterly of Healthcare Ethics. 29, 3, blz. 338-345 8 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  3 Citaten (Scopus)

  47 Downloads (Pure)

• Public Health Ethics and Covid-19 The ethical dimensions of public health decision-making during a pandemic

  Heilinger, J-C., Thompson, A., Wild, V., Ballantyne, A., Berlinger, N., Chung, R., Eckenwiler, L., Ehni, H-J., Mitra, A. G., Hurst, S., Maeckelberghe, E. L. M., Marckmann, G., Munthe, C., Rid, A., Schröder-Bäck, P., Strech, D. & Venkatapuram, S., 22-apr.-2020, 8 blz.

  Onderzoeksoutput: Other contribution › Academic

  Open Access

  Bestand
  42 Downloads (Pure)

• Trust in Centralized Large-Scale Data Repository: A Qualitative Analysis

  Broekstra, R., Aris-Meijer, J., Maeckelberghe, E., Stolk, R. & Otten, S., 1-okt.-2020, In: Journal of empirical research on human research ethics. 15, 4, blz. 365-378 14 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  11 Citaten (Scopus)

  171 Downloads (Pure)

• Understanding the child-doctor relationship in research participation: a qualitative study

  Luchtenberg, M. L., Maeckelberghe, E. L. M., Locock, L. & Verhagen, A. A. E., 24-jul.-2020, In: BMC Pediatrics. 20, 1, 10 blz., 353.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  2 Citaten (Scopus)

  64 Downloads (Pure)

• Uptake and effectiveness of a tailor-made online lifestyle programme targeting modifiable risk factors for dementia among middle-aged descendants of people with recently diagnosed dementia: study protocol of a cluster randomised controlled trial (Demin study)

  Demin consortium, Vrijsen, J., Abu-Hanna, A., Maeckelberghe, E. L., De Deyn, P. P., de Winter, A. F., Reesink, F. E., Oude Voshaar, R. C., Buskens, E., de Rooij, S. E. & Smidt, N., 2020, In: BMJ Open. 10, 10, 10 blz., e039439.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  3 Citaten (Scopus)

  46 Downloads (Pure)

• Vaccination Policy: Ethical perspectives on a future vaccination program against COVID-19 in Germany.

  Schröder-Bäck, P., Wild, V., Heilinger, J-C., Buyx, A., Ehni, H-J., Hurst, S., Kuhn, J., Ludwig, M-S., Maeckelberghe, E. L. M., Martakis, K., Michelsen, K. & Ranisch, R., 22-mei-2020, 7 blz.

  Onderzoeksoutput: Other contribution › Academic

  Open Access

  Bestand
  19 Downloads (Pure)
• 2019

  Ethical aspects of digital health from a justice point of view

  Brall, C., Schröder-Bäck, P. & Maeckelberghe, E., 18-nov.-2019, In: European Journal of Public Health. 29, Supplement_3, blz. 18-22 5 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  29 Citaten (Scopus)

  126 Downloads (Pure)

• Norms in and between the philosophical ivory tower and public health practice: A heuristic model of translational ethics

  Schröder-Bäck, P., van Duin, C., Brall, C., Scholtes, B., Tahzib, F. & Maeckelberghe, E., 19-apr.-2019, In: South Eastern European Journal of Public Health. XI, 7 blz.

  Onderzoeksoutput: Editorial › Academic › peer review

  Open Access

  Bestand
  1 Citaat (Scopus)

  58 Downloads (Pure)
• 2018

  An analysis of the concept of solidarity from a Dutch and Japanese perspectives: solidariteit and kizuna

  Broekstra, R., Maeckelberghe, E., Kato, K. & Kogetsu, A., 5-dec.-2018, blz. 142.

  Onderzoeksoutput: Abstract › Academic

  Open Access

  Bestand
  25 Downloads (Pure)

• Introduction: How to address implicit and explicit public health research norms

  Maeckelberghe, E. L. M., nov.-2018, In: European Journal of Public Health. 28, blz. 255 1 blz.

  Onderzoeksoutput: Meeting Abstract › Academic

• Protecting or empowering the most vulnerable? Challenges to human rights-based Public Health

  Maeckelberghe, E. L. M., nov.-2018, In: European Journal of Public Health. 28, blz. 296 1 blz.

  Onderzoeksoutput: Meeting Abstract › Academic

• Quality of Living and Dying: Pediatric Palliative Care and End-of-Life Decisions in the Netherlands

  Brouwer, M., Maeckelberghe, E., DE Weerd, W. & Verhagen, E., jul.-2018, In: Cambridge Quarterly of Healthcare Ethics. 27, 3, blz. 376-384 9 blz.

  Onderzoeksoutput: Article › Academic › peer review
  3 Citaten (Scopus)

• Screening for infectious diseases of asylum seekers upon arrival: The necessity of the moral principle of reciprocity

  Beeres, D. T., Cornish, D., Vonk, M., Ravensbergen, S. J., Maeckelberghe, E. L. M., Boele Van Hensbroek, P. & Stienstra, Y., 2018, In: Bmc medical ethics. 19, 16, 7 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  10 Citaten (Scopus)

  326 Downloads (Pure)

• Should Pediatric Euthanasia be Legalized?

  Brouwer, M., Kaczor, C., Battin, M. P., Maeckelberghe, E., Lantos, J. D. & Verhagen, E., feb.-2018, In: Pediatrics. 141, 2, 5 blz., 20171343.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  15 Citaten (Scopus)

  20 Downloads (Pure)
• 2017

  Capable and credible? Challenging nutrition science: Challenging nutrition science

  Penders, B., Wolters, A., Feskens, E. F., Brouns, F., Huber, M., Maeckelberghe, E. L. M., Navis, G., Ockhuizen, T., Plat, J., Sikkema, J., Stasse-Wolthuis, M., van 't Veer, P., Verweij, M. & de Vries, J., sep.-2017, In: European Journal of Nutrition. 56, 6, 4 blz.

  Onderzoeksoutput: Editorial › Academic › peer review

  Open Access

  Bestand
  31 Citaten (Scopus)

  366 Downloads (Pure)

• Ethics in public health: call for shared moral public health literacy

  Maeckelberghe, E. L. M. & Schröder-Bäck, P., okt.-2017, In: European Journal of Public Health. 27, suppl_4, blz. 49-51 3 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  14 Citaten (Scopus)

  12 Downloads (Pure)

• Het genoegen van het ontdekken. De deugden van de wetenschapper

  Maeckelberghe, E., 19-dec.-2017, Karakter. Deugden voor professionals. Sanderse, W. & Kole, J. (redactie). Leusden: ISWV, blz. 65-73 9 blz.

  Onderzoeksoutput › Professional

• Privacy and anonymity in public sharing of high-dimensional datasets: Legal and ethical restrictions

  Jolij, J., Koolhoven, R., Lorist, M. & Maeckelberghe, E., 14-sep.-2017, (Submitted) PsyArXiv Preprints, 22 blz.

  Onderzoeksoutput: Working paper › Academic

• Research Ethics 2.0: New Perspectives on Norms, Values, and Integrity in Genomic Research in Times of Even Scarcer Resources

  Brall, C., Maeckelberghe, E., Porz, R., Makhoul, J. & Schröder-Bäck, P., jun.-2017, In: Public Health Genomics. 20, 1, blz. 27-35 9 blz.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  9 Citaten (Scopus)

  461 Downloads (Pure)

• Research Ethics Quiz

  Maeckelberghe, E., nov.-2017, In: European Journal of Public Health. 27, blz. 279 1 blz.

  Onderzoeksoutput: Meeting Abstract › Academic

• Trisomie 18: Hoe lethaal is ‘lethaal’?

  Brouwer, M. A., Maeckelberghe, E. L. M., Van Der Hoeven, M. A. H. B. M., Schutte, J., Wee, H. L., Willekes, C. & Verhagen, A. A. E. E., 2017, In: Nederlands Tijdschrift voor Geneeskunde. 161, 0, 3 blz., D1716.

  Onderzoeksoutput: Article › Academic › peer review

  Open Access

  Bestand
  2 Citaten (Scopus)

  3 Downloads (Pure)

• Written informed consent in health research is outdated

  Broekstra, R., Maeckelberghe, E. L. M. & Stolk, R. P., 1-apr.-2017, In: European Journal of Public Health. 27, 2, blz. 194-195 2 blz.

  Onderzoeksoutput: Editorial › Academic › peer review
  3 Citaten (Scopus)
• 2016

  A Response to the Open Peer Commentaries on “Young People's Experiences of Participation in Clinical Trials: Reasons for Taking Part”

  Luchtenberg, M., Maeckelberghe, E., Locock, L., Powell, L. & Verhagen, E., feb.-2016, In: American journal of bioethics. 16, 2, blz. W10-W12 3 blz.

  Onderzoeksoutput: Letter › Academic › peer review

• Morele reflectie in de zorgpraktijk: hoe mooie woorden waar te maken?

  Maeckelberghe, E., feb.-2016, In: Tijdschrift voor Gezondheidszorg & Ethiek. 26, 1, 5 blz.

  Onderzoeksoutput › Professional
• 2015

  Changing your health behaviour: regulate or not?

  Maeckelberghe, E. & McKee, M., 2015, In: Eurohealth. 21, 1, blz. 29-31.

  Onderzoeksoutput: Article › Professional

• Critical discernment in collaboration with private partners

  Maeckelberghe, E. & Barnhoorn, F., okt.-2015, In: European Journal of Public Health. 25, 5, blz. 755-756 3 blz.

  Onderzoeksoutput: Editorial › Academic › peer review
  1 Citaat (Scopus)

• Een narratief opgestelde wilsverklaring voor euthanasie in geval van dementie

  Nuijten, A., Maeckelberghe, E. & van der Poel, B., 2015, In: Tijdschrift voor Gezondheidszorg & Ethiek (TGE). 25, 2, blz. 41 - 47 7 blz.

  Onderzoeksoutput: Article › Academic › peer review