A valuable burden? The impact of children with profound intellectual and multiple disabilities on family life

Jorien Luijkx*, Annette A. J. van der Putten, Carla Vlaskamp

*Bijbehorende auteur voor dit werk

Onderzoeksoutput: ArticleAcademicpeer review

11 Citaten (Scopus)
115 Downloads (Pure)

Samenvatting

Background: This study analysed parents' positive and negative appraisals of the impact of raising children with profound intellectual and multiple disabilities (PIMD) on family life. Method: Mothers (n = 52) and fathers (n = 27) of 56 children with PIMD completed a questionnaire focused on their positive and negative appraisals of the impact of childhood disability on family life. Scale means (ranging from 10 to 40) were calculated, as was the relationship between the two subscales. Results: Mothers and fathers indicated that their children affect family life both positively (M = 31.4 and 32.8, respectively) and negatively (M = 31.3 and 28.5, respectively). Only fathers showed a positive significant relationship between the positive and negative subscales. Conclusions: Parents' positive and negative appraisals co-occur. Although parents positively appraise the impact on family life, their substantial negative appraisals demand tailored support for families raising children with PIMD with a strong focus on practical support.

Originele taal-2English
Pagina's (van-tot)184-189
Aantal pagina's6
TijdschriftJournal of intellectual & developmental disability
Volume44
Nummer van het tijdschrift2
Vroegere onlinedatum5-jul-2017
DOI's
StatusPublished - 3-apr-2019

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