TY - JOUR
T1 - Assessing the reliability and validity of a health-related quality of life instrument, CPADULT, in a Dutch sample of adults with severe disabilities who are non-ambulatory
AU - Zalmstra, Trees A.L.
AU - Reinders-Messelink, Heleen A.
AU - Elema, Agnes
AU - van Gils, Willemijn
AU - van der Sluis, Corry K.
AU - van der Putten, Annette A.J.
N1 - Publisher Copyright:
© 2023 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.
PY - 2024/1
Y1 - 2024/1
N2 - Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the psychometric characteristics of the CPADULT.Method: Caregivers (n = 47; 77% female, 23% male) of individuals with severe disabilities who are non-ambulatory completed the questionnaire. Internal consistency, test–retest reliability and construct validity were analysed.Results: Internal consistency was adequate with Cronbach's alpha values from 0.75 to 0.95. Test–retest reliability was good, as intraclass correlation coefficient of the total score was 0.84 (domains: 0.61–0.89). Construct validity was confirmed with significant differences between subgroups of motor or intellectual abilities.Conclusion: The CPADULT has sufficient reliability and validity as a proxy measure of health-related quality of life for adults with severe disabilities who are non-ambulatory.
AB - Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the psychometric characteristics of the CPADULT.Method: Caregivers (n = 47; 77% female, 23% male) of individuals with severe disabilities who are non-ambulatory completed the questionnaire. Internal consistency, test–retest reliability and construct validity were analysed.Results: Internal consistency was adequate with Cronbach's alpha values from 0.75 to 0.95. Test–retest reliability was good, as intraclass correlation coefficient of the total score was 0.84 (domains: 0.61–0.89). Construct validity was confirmed with significant differences between subgroups of motor or intellectual abilities.Conclusion: The CPADULT has sufficient reliability and validity as a proxy measure of health-related quality of life for adults with severe disabilities who are non-ambulatory.
KW - cerebral palsy
KW - health-related quality of life
KW - severe disabilities
KW - validation
UR - http://www.scopus.com/inward/record.url?scp=85171745875&partnerID=8YFLogxK
U2 - 10.1111/jar.13160
DO - 10.1111/jar.13160
M3 - Article
C2 - 37737053
AN - SCOPUS:85171745875
SN - 1360-2322
VL - 37
JO - Journal of Applied Research in Intellectual Disabilities
JF - Journal of Applied Research in Intellectual Disabilities
IS - 1
M1 - e13160
ER -