TY - JOUR
T1 - Caring for Children with an Autism Spectrum Disorder
T2 - Factors Associating with Health- and Care-Related Quality of Life of the Caregivers
AU - ten Hoopen, Leontine W.
AU - de Nijs, Pieter F. A.
AU - Duvekot, Jorieke
AU - Greaves-Lord, Kirstin
AU - Hillegers, Manon H. J.
AU - Brouwer, Werner B. F.
AU - Hakkaart-van Roijen, Leona
PY - 2022/11
Y1 - 2022/11
N2 - This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively assess health-related QoL and care-related QoL. Health-related QoL was associated with the caregiver's internalizing problems and adaptive coping, explaining 38% of the variance. Parenting stress and adaptive coping were associated with the care-related QoL and explained 60% of the variance. Child variables were not associated with the caregiver's health- and care-related QoL if caregiver and caregiving variables were taken into account. Findings indicate the importance of the caregiver's mental health, coping, and parenting stress in caring for children with ASD.
AB - This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively assess health-related QoL and care-related QoL. Health-related QoL was associated with the caregiver's internalizing problems and adaptive coping, explaining 38% of the variance. Parenting stress and adaptive coping were associated with the care-related QoL and explained 60% of the variance. Child variables were not associated with the caregiver's health- and care-related QoL if caregiver and caregiving variables were taken into account. Findings indicate the importance of the caregiver's mental health, coping, and parenting stress in caring for children with ASD.
KW - Autism spectrum disorder (ASD)
KW - Children
KW - Caregiver
KW - Health-related quality of life
KW - CarerQol
KW - EQ-5D
KW - SOCIAL RESPONSIVENESS SCALE
KW - PARENTS
KW - MOTHERS
KW - STRESS
KW - ADOLESCENTS
KW - EUROQOL
KW - ANXIETY
KW - FATHERS
KW - QUESTIONNAIRE
KW - SATISFACTION
U2 - 10.1007/s10803-021-05336-7
DO - 10.1007/s10803-021-05336-7
M3 - Article
SN - 0162-3257
VL - 52
SP - 4665
EP - 4678
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
ER -