Changes in empowerment and anxiety of patients and parents during genetic counselling for epilepsy

Danique R M Vlaskamp, Patrick Rump, Petra M C Callenbach, Eva H Brilstra, Mary E Velthuizen, Oebele F Brouwer, Adelita V Ranchor, Conny M A van Ravenswaaij-Arts*

*Bijbehorende auteur voor dit werk

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Genetic testing and counselling are increasingly important in epilepsy care, aiming at finding a diagnosis, understanding aetiology and improving treatment and outcome. The psychological impact of genetic counselling from patients' or parents & rsquo; perspectives is, however, unknown. We studied the counseleereported outcome of genetic counselling before and after genetic testing for epilepsy by evaluating empowerment - a key outcome goal of counselling reflecting cognitive, decisional and behavioural control, emotional regulation and hope - and anxiety. We asked patients or their parents (for those

(c) 2021 The Author(s). Published by Elsevier Ltd on behalf of European Paediatric Neurology Society. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).

Originele taal-2English
Pagina's (van-tot)128-135
Aantal pagina's8
TijdschriftEuropean Journal of Paediatric Neurology
Volume32
Vroegere onlinedatum2-apr-2021
DOI's
StatusPublished - mei-2021

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