Decision making, outcomes and result disclosure in the field surrounding genetic counselling


    214 Downloads (Pure)


    This thesis focuses on new developments (techniques, outcomes, procedures) in the field surrounding genetic counselling, in need of further research, to become part of evidence-based practice. The main aims are to examine: 1) what determines intended participation in expanded carrier screening and can this be influenced by message framing and narrative information, 2) the psychometric properties, outcomes and counselees profiles with the Dutch version of the Genetic Counselling Outcome Scale (GCOS); a potential valuable outcome measure for genetic counselling measuring empowerment, and 3) the introduction of a choice to receive predictive DNA test results by letter or face-to-face for pre-symptomatic counselees at risk of hereditary cancer compared to the traditional protocol in which counselees have to receive the results face-to-face by default.
    Originele taal-2English
    KwalificatieDoctor of Philosophy
    Toekennende instantie
    • Rijksuniversiteit Groningen
    • Ranchor, Adelita, Supervisor
    • van Langen, Irene, Supervisor
    Datum van toekenning15-feb.-2023
    Plaats van publicatie[Groningen]
    StatusPublished - 2023

    Citeer dit