TY - JOUR
T1 - Dementia in people with severe/profound intellectual (and multiple) disabilities: Applicability of items in dementia screening instruments for people with intellectual disabilities
AU - Wissing, Maureen B.G.
AU - Dijkstra, Roos
AU - van der Wal, Ina A.
AU - Grootendorst, Esther S.
AU - Hobbelen, Johannes S.M.
AU - van der Putten, Annette A.J.
AU - De Deyn, Peter P.
AU - Waninge, Aly
AU - Dekker, Alain D.
N1 - Publisher Copyright:
© 2022 The Author(s). Published with license by Taylor & Francis Group, LLC.
PY - 2022
Y1 - 2022
N2 - Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia screening instruments.Methods: Informant interviews about 40 people with SPI(M)D were conducted to identify applicable items in the Dementia Scale for Down Syndrome, Behavioral and Psychological Symptoms of Dementia in Down Syndrome II scale, Dementia Questionnaire for persons with Mental Retardation and Social competence Rating scale for people with Intellectual Disabilities.Results: Among 193 items, 101 items were found applicable, categorized in 5 domains: behavioral and psychological functioning (60 items), cognitive functioning (25), motor functioning (6), activities of daily living (5) and medical comorbidities (5).Conclusion: Identifying applicable items for people with SPI(M)D is an essential step in developing a dedicated dementia screening instrument for this population.
AB - Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia screening instruments.Methods: Informant interviews about 40 people with SPI(M)D were conducted to identify applicable items in the Dementia Scale for Down Syndrome, Behavioral and Psychological Symptoms of Dementia in Down Syndrome II scale, Dementia Questionnaire for persons with Mental Retardation and Social competence Rating scale for people with Intellectual Disabilities.Results: Among 193 items, 101 items were found applicable, categorized in 5 domains: behavioral and psychological functioning (60 items), cognitive functioning (25), motor functioning (6), activities of daily living (5) and medical comorbidities (5).Conclusion: Identifying applicable items for people with SPI(M)D is an essential step in developing a dedicated dementia screening instrument for this population.
KW - Dementia
KW - Down syndrome
KW - instruments
KW - intellectual disabilities
KW - severe/profound intellectual (and multiple) disabilities
U2 - 10.1080/19315864.2022.2111737
DO - 10.1080/19315864.2022.2111737
M3 - Article
AN - SCOPUS:85136997356
SN - 1931-5864
VL - 15
SP - 322
EP - 363
JO - Journal of mental health research in intellectual disabilities
JF - Journal of mental health research in intellectual disabilities
IS - 4
ER -