Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities

Maureen B.G. Wissing, Roos Dijkstra, Ina A. van der Wal, Esther S. Grootendorst, Johannes S.M. Hobbelen, Annette A.J. van der Putten, Peter P. De Deyn, Aly Waninge, Alain D. Dekker*

*Bijbehorende auteur voor dit werk

OnderzoeksoutputAcademicpeer review

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Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia screening instruments.

Methods: Informant interviews about 40 people with SPI(M)D were conducted to identify applicable items in the Dementia Scale for Down Syndrome, Behavioral and Psychological Symptoms of Dementia in Down Syndrome II scale, Dementia Questionnaire for persons with Mental Retardation and Social competence Rating scale for people with Intellectual Disabilities.

Results: Among 193 items, 101 items were found applicable, categorized in 5 domains: behavioral and psychological functioning (60 items), cognitive functioning (25), motor functioning (6), activities of daily living (5) and medical comorbidities (5).

Conclusion: Identifying applicable items for people with SPI(M)D is an essential step in developing a dedicated dementia screening instrument for this population.

Originele taal-2English
Pagina's (van-tot)322-363
Aantal pagina's42
TijdschriftJournal of mental health research in intellectual disabilities
Volume15
Nummer van het tijdschrift4
Vroegere onlinedatum29-aug-2022
DOI's
StatusPublished - 2022

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