Kidney transplant patients' attitudes towards self-management support: A Q-methodological study

J W Grijpma; M Tielen; A L van Staa; L Maasdam; T van Gelder; S P Berger; J J Busschbach; M G H Betjes; W Weimar; E K Massey

doi:10.1016/j.pec.2015.11.018

Kidney transplant patients' attitudes towards self-management support: A Q-methodological study

J W Grijpma, M Tielen, A L van Staa, L Maasdam, T van Gelder, S P Berger, J J Busschbach, M G H Betjes, W Weimar, E K Massey

Onderzoeksoutput: Article › Academic › peer review

25 Citaten (Scopus)

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OBJECTIVE: Kidney transplant recipients face many self-management challenges. We aimed to identify profiles of attitudes towards self-management support (SMS) shortly after kidney transplantation.

METHODS: Profiles were generated using Q-methodology: In face-to-face interviews participants rank-ordered opinion statements on aspects of SMS according to agreement. Socio-demographic and medical characteristics were assessed using a questionnaire. By-person factor analysis was used to analyze the rankings and qualitative data was used to support choice of profiles. The resulting factors represent clusters of patients with similar attitudes towards SMS.

RESULTS: Forty-three patients (mean age=56; 77% male) participated. Four profiles were identified: (A) transplant-focused and obedient; (B) holistic and collaborative; (C) life-focused and self-determined; and (D) was bipolar. The positive pole (D+) minimalizing and disengaged and the negative pole (D-) coping-focused and needy represent opposing viewpoints within the same profile. Socio-demographic and medical characteristics were not related to profile membership.

DISCUSSION: Each profile represents a specific attitude on post-transplant life, responsibility for health and decision-making, SMS needs, and preferences for SMS.

PRACTICAL IMPLICATIONS: Patients vary in their attitude, needs and preferences for SMS indicating the necessity of providing personalized support after kidney transplantation. Health professionals should explore patients' SMS needs and adapt support accordingly.

Originele taal-2	English
Pagina's (van-tot)	836-843
Aantal pagina's	8
Tijdschrift	Patient Education and Counseling
Volume	99
Nummer van het tijdschrift	5
DOI's	https://doi.org/10.1016/j.pec.2015.11.018
Status	Published - mei-2016
Extern gepubliceerd	Ja

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abstract = "OBJECTIVE: Kidney transplant recipients face many self-management challenges. We aimed to identify profiles of attitudes towards self-management support (SMS) shortly after kidney transplantation.METHODS: Profiles were generated using Q-methodology: In face-to-face interviews participants rank-ordered opinion statements on aspects of SMS according to agreement. Socio-demographic and medical characteristics were assessed using a questionnaire. By-person factor analysis was used to analyze the rankings and qualitative data was used to support choice of profiles. The resulting factors represent clusters of patients with similar attitudes towards SMS.RESULTS: Forty-three patients (mean age=56; 77% male) participated. Four profiles were identified: (A) transplant-focused and obedient; (B) holistic and collaborative; (C) life-focused and self-determined; and (D) was bipolar. The positive pole (D+) minimalizing and disengaged and the negative pole (D-) coping-focused and needy represent opposing viewpoints within the same profile. Socio-demographic and medical characteristics were not related to profile membership.DISCUSSION: Each profile represents a specific attitude on post-transplant life, responsibility for health and decision-making, SMS needs, and preferences for SMS.PRACTICAL IMPLICATIONS: Patients vary in their attitude, needs and preferences for SMS indicating the necessity of providing personalized support after kidney transplantation. Health professionals should explore patients' SMS needs and adapt support accordingly.",

keywords = "Adaptation, Psychological, Adult, Aged, Attitude, Cooperative Behavior, Female, Humans, Interviews as Topic, Kidney Failure, Chronic, Kidney Transplantation, Male, Middle Aged, Patient Compliance, Patient Preference, Q-Sort, Qualitative Research, Self Care, Surveys and Questionnaires, Journal Article, Research Support, Non-U.S. Gov't",

author = "Grijpma, {J W} and M Tielen and {van Staa}, {A L} and L Maasdam and {van Gelder}, T and Berger, {S P} and Busschbach, {J J} and Betjes, {M G H} and W Weimar and Massey, {E K}",

year = "2016",

month = may,

doi = "10.1016/j.pec.2015.11.018",

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T1 - Kidney transplant patients' attitudes towards self-management support

T2 - A Q-methodological study

AU - Grijpma, J W

AU - Tielen, M

AU - van Staa, A L

AU - Maasdam, L

AU - van Gelder, T

AU - Berger, S P

AU - Busschbach, J J

AU - Betjes, M G H

AU - Weimar, W

AU - Massey, E K

PY - 2016/5

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N2 - OBJECTIVE: Kidney transplant recipients face many self-management challenges. We aimed to identify profiles of attitudes towards self-management support (SMS) shortly after kidney transplantation.METHODS: Profiles were generated using Q-methodology: In face-to-face interviews participants rank-ordered opinion statements on aspects of SMS according to agreement. Socio-demographic and medical characteristics were assessed using a questionnaire. By-person factor analysis was used to analyze the rankings and qualitative data was used to support choice of profiles. The resulting factors represent clusters of patients with similar attitudes towards SMS.RESULTS: Forty-three patients (mean age=56; 77% male) participated. Four profiles were identified: (A) transplant-focused and obedient; (B) holistic and collaborative; (C) life-focused and self-determined; and (D) was bipolar. The positive pole (D+) minimalizing and disengaged and the negative pole (D-) coping-focused and needy represent opposing viewpoints within the same profile. Socio-demographic and medical characteristics were not related to profile membership.DISCUSSION: Each profile represents a specific attitude on post-transplant life, responsibility for health and decision-making, SMS needs, and preferences for SMS.PRACTICAL IMPLICATIONS: Patients vary in their attitude, needs and preferences for SMS indicating the necessity of providing personalized support after kidney transplantation. Health professionals should explore patients' SMS needs and adapt support accordingly.

AB - OBJECTIVE: Kidney transplant recipients face many self-management challenges. We aimed to identify profiles of attitudes towards self-management support (SMS) shortly after kidney transplantation.METHODS: Profiles were generated using Q-methodology: In face-to-face interviews participants rank-ordered opinion statements on aspects of SMS according to agreement. Socio-demographic and medical characteristics were assessed using a questionnaire. By-person factor analysis was used to analyze the rankings and qualitative data was used to support choice of profiles. The resulting factors represent clusters of patients with similar attitudes towards SMS.RESULTS: Forty-three patients (mean age=56; 77% male) participated. Four profiles were identified: (A) transplant-focused and obedient; (B) holistic and collaborative; (C) life-focused and self-determined; and (D) was bipolar. The positive pole (D+) minimalizing and disengaged and the negative pole (D-) coping-focused and needy represent opposing viewpoints within the same profile. Socio-demographic and medical characteristics were not related to profile membership.DISCUSSION: Each profile represents a specific attitude on post-transplant life, responsibility for health and decision-making, SMS needs, and preferences for SMS.PRACTICAL IMPLICATIONS: Patients vary in their attitude, needs and preferences for SMS indicating the necessity of providing personalized support after kidney transplantation. Health professionals should explore patients' SMS needs and adapt support accordingly.

KW - Adaptation, Psychological

KW - Adult

KW - Aged

KW - Attitude

KW - Cooperative Behavior

KW - Female

KW - Humans

KW - Interviews as Topic

KW - Kidney Failure, Chronic

KW - Kidney Transplantation

KW - Male

KW - Middle Aged

KW - Patient Compliance

KW - Patient Preference

KW - Q-Sort

KW - Qualitative Research

KW - Self Care

KW - Surveys and Questionnaires

KW - Journal Article

KW - Research Support, Non-U.S. Gov't

U2 - 10.1016/j.pec.2015.11.018

DO - 10.1016/j.pec.2015.11.018

M3 - Article

C2 - 26682972

SN - 0738-3991

VL - 99

SP - 836

EP - 843

JO - Patient Education and Counseling

JF - Patient Education and Counseling

IS - 5

ER -

Kidney transplant patients' attitudes towards self-management support: A Q-methodological study

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