Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia

Astri Ferdiana; Marcel W M Post; Nigel King; Ute Bültmann; Jac J L van der Klink

doi:10.1080/09638288.2017.1294204

Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia

Astri Ferdiana^*, Marcel W M Post, Nigel King, Ute Bültmann, Jac J L van der Klink

^*Corresponding author voor dit werk

Onderzoeksoutput › Academic › peer review

25 Citaten (Scopus)

471 Downloads (Pure)

Samenvatting

Purpose: Knowledge on the meaning of quality of life in individuals with spinal cord injury in developing countries is limited. This study aims to explore the meaning and components of quality of life for individuals with spinal cord injury in a rural area in Indonesia.

Method: Data were obtained through semi-structured interviews with 12 individuals with paraplegia (8 males, 4 females) aged 24-67years. Thematic analysis was used to identify themes that constitute meaning and components of quality of life.

Results: Quality of life was not an easily understood concept, while "life satisfaction" and "happiness" were. Life satisfaction was associated with a person's feeling when achieving goals or dreams and related to fulfillment of needs. Thirteen components of life satisfaction were identified and categorized into five domains as follows: (1) participation: earning income and work, being useful to others, community participation, and having skills and knowledge, (2) social support: social support, social relationship, (3) relationship with God: injury is God's will, praying, (4) independence: being independent, mobility and accessibility, and health, and (5) psychological resources: accepting the condition, maintaining goals and motivation.

Conclusions: Social, cultural and religious influences were prominent in the perception of life satisfaction. The measurement of quality of life for individuals with spinal cord injury in Indonesia needs to consider locally perceived meaning and components of quality of life.

IMPLICATIONS FOR REHABILITATION

Financial, social and health needs of individuals with spinal cord injury in Indonesia must be immediately addressed.

To increase financial independence, rehabilitation professionals should equip individuals with spinal cord injury with adequate self-employment skills.

Sociocultural and religious aspects should be considered in the measurement of quality of life.

Originele taal-2	English
Pagina's (van-tot)	1183-1191
Aantal pagina's	9
Tijdschrift	Disability and Rehabilitation
Volume	40
Nummer van het tijdschrift	10
DOI's	https://doi.org/10.1080/09638288.2017.1294204
Status	Published - 2018

Toegang tot document

10.1080/09638288.2017.1294204Licentie: CC BY-NC-ND

Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, IndonesiaFinal publisher's version, 1,33 MBLicentie: CC BY-NC-ND

Handle.net

Permanente koppeling

Citeer dit

@article{1b30911785f64f24b8591338b25297a6,

title = "Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia",

abstract = "Purpose: Knowledge on the meaning of quality of life in individuals with spinal cord injury in developing countries is limited. This study aims to explore the meaning and components of quality of life for individuals with spinal cord injury in a rural area in Indonesia.Method: Data were obtained through semi-structured interviews with 12 individuals with paraplegia (8 males, 4 females) aged 24-67years. Thematic analysis was used to identify themes that constitute meaning and components of quality of life.Results: Quality of life was not an easily understood concept, while {"}life satisfaction{"} and {"}happiness{"} were. Life satisfaction was associated with a person's feeling when achieving goals or dreams and related to fulfillment of needs. Thirteen components of life satisfaction were identified and categorized into five domains as follows: (1) participation: earning income and work, being useful to others, community participation, and having skills and knowledge, (2) social support: social support, social relationship, (3) relationship with God: injury is God's will, praying, (4) independence: being independent, mobility and accessibility, and health, and (5) psychological resources: accepting the condition, maintaining goals and motivation.Conclusions: Social, cultural and religious influences were prominent in the perception of life satisfaction. The measurement of quality of life for individuals with spinal cord injury in Indonesia needs to consider locally perceived meaning and components of quality of life.IMPLICATIONS FOR REHABILITATIONFinancial, social and health needs of individuals with spinal cord injury in Indonesia must be immediately addressed.To increase financial independence, rehabilitation professionals should equip individuals with spinal cord injury with adequate self-employment skills.Sociocultural and religious aspects should be considered in the measurement of quality of life.",

keywords = "Quality of life, spinal cord injury, disabled persons, developing countries, HEALTH, SATISFACTION, TRANSLATION, WHOQOL, WORLD, QUESTIONNAIRE, SPIRITUALITY, EPIDEMIOLOGY, VALIDATION, EARTHQUAKE",

author = "Astri Ferdiana and Post, {Marcel W M} and Nigel King and Ute B{\"u}ltmann and {van der Klink}, {Jac J L}",

year = "2018",

doi = "10.1080/09638288.2017.1294204",

language = "English",

volume = "40",

pages = "1183--1191",

journal = "Disability and Rehabilitation",

issn = "0963-8288",

publisher = "Taylor & Francis Group",

number = "10",

}

TY - JOUR

T1 - Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia

AU - Ferdiana, Astri

AU - Post, Marcel W M

AU - King, Nigel

AU - Bültmann, Ute

AU - van der Klink, Jac J L

PY - 2018

Y1 - 2018

N2 - Purpose: Knowledge on the meaning of quality of life in individuals with spinal cord injury in developing countries is limited. This study aims to explore the meaning and components of quality of life for individuals with spinal cord injury in a rural area in Indonesia.Method: Data were obtained through semi-structured interviews with 12 individuals with paraplegia (8 males, 4 females) aged 24-67years. Thematic analysis was used to identify themes that constitute meaning and components of quality of life.Results: Quality of life was not an easily understood concept, while "life satisfaction" and "happiness" were. Life satisfaction was associated with a person's feeling when achieving goals or dreams and related to fulfillment of needs. Thirteen components of life satisfaction were identified and categorized into five domains as follows: (1) participation: earning income and work, being useful to others, community participation, and having skills and knowledge, (2) social support: social support, social relationship, (3) relationship with God: injury is God's will, praying, (4) independence: being independent, mobility and accessibility, and health, and (5) psychological resources: accepting the condition, maintaining goals and motivation.Conclusions: Social, cultural and religious influences were prominent in the perception of life satisfaction. The measurement of quality of life for individuals with spinal cord injury in Indonesia needs to consider locally perceived meaning and components of quality of life.IMPLICATIONS FOR REHABILITATIONFinancial, social and health needs of individuals with spinal cord injury in Indonesia must be immediately addressed.To increase financial independence, rehabilitation professionals should equip individuals with spinal cord injury with adequate self-employment skills.Sociocultural and religious aspects should be considered in the measurement of quality of life.

AB - Purpose: Knowledge on the meaning of quality of life in individuals with spinal cord injury in developing countries is limited. This study aims to explore the meaning and components of quality of life for individuals with spinal cord injury in a rural area in Indonesia.Method: Data were obtained through semi-structured interviews with 12 individuals with paraplegia (8 males, 4 females) aged 24-67years. Thematic analysis was used to identify themes that constitute meaning and components of quality of life.Results: Quality of life was not an easily understood concept, while "life satisfaction" and "happiness" were. Life satisfaction was associated with a person's feeling when achieving goals or dreams and related to fulfillment of needs. Thirteen components of life satisfaction were identified and categorized into five domains as follows: (1) participation: earning income and work, being useful to others, community participation, and having skills and knowledge, (2) social support: social support, social relationship, (3) relationship with God: injury is God's will, praying, (4) independence: being independent, mobility and accessibility, and health, and (5) psychological resources: accepting the condition, maintaining goals and motivation.Conclusions: Social, cultural and religious influences were prominent in the perception of life satisfaction. The measurement of quality of life for individuals with spinal cord injury in Indonesia needs to consider locally perceived meaning and components of quality of life.IMPLICATIONS FOR REHABILITATIONFinancial, social and health needs of individuals with spinal cord injury in Indonesia must be immediately addressed.To increase financial independence, rehabilitation professionals should equip individuals with spinal cord injury with adequate self-employment skills.Sociocultural and religious aspects should be considered in the measurement of quality of life.

KW - Quality of life

KW - spinal cord injury

KW - disabled persons

KW - developing countries

KW - HEALTH

KW - SATISFACTION

KW - TRANSLATION

KW - WHOQOL

KW - WORLD

KW - QUESTIONNAIRE

KW - SPIRITUALITY

KW - EPIDEMIOLOGY

KW - VALIDATION

KW - EARTHQUAKE

U2 - 10.1080/09638288.2017.1294204

DO - 10.1080/09638288.2017.1294204

M3 - Article

C2 - 28271725

SN - 0963-8288

VL - 40

SP - 1183

EP - 1191

JO - Disability and Rehabilitation

JF - Disability and Rehabilitation

IS - 10

ER -

Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia

Samenvatting

Toegang tot document

Handle.net

Vingerafdruk

Citeer dit