Measuring satisfaction with general and end-of-life care in the intensive care unit: The euroQ2 project

Richard Theodorus Gerritsen

Measuring satisfaction with general and end-of-life care in the intensive care unit: The euroQ2 project

Vertaalde titel van de bijdrage: Het meten van tevredenheid met algemene en einde-leven-zorg op de intensive care: Het euroQ2 project

Richard Theodorus Gerritsen

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Bij intensive Care denkt men vaak dat het gaat om heroïek en apparaten. De essentie van intensive care geneeskunde is echter het maken van keuzes. Het gaat erom de beste zorg te bieden aan die patiënt op de juiste plek op het goede tijdstip.. Familieleden, in de ruimste zin van het woord, betrekken bij de zorg in het algemeen en bij het nemen van beslissingen omtrent zorg in het bijzonder is belangrijk, de zogenaamde “family-centered care “. Om de waarden, wensen en verwachtingen van patiënten en familie goed in te kunnen schatten en om vast te stellen of er zoveel mogelijk aan tegemoet te kunnen komen is een uitdagende taak en het onderwerp van dit proefschrift.
Om ook voor de groep patiënten die sterven op de IC en hun naasten goede zorg, met name einde-leven-zorg te kunnen bieden is een integraal en belangrijk onderdeel van intensive care zorg. Omdat Amerikaanse vragenlijsten niet passend blijken om deze zorg te evalueren hebben wij samen met een Deense onderzoeker een Europese variant ontwikkeld en gevalideerd (euroQ2).
De conclusie van dit proefschrift, gebruik makend van de vragenlijst, is dat de door familie beleefde kwaliteit van intensive care zorg in het algemeen en van einde-leven-zorg in het bijzonder op Deense en Nederlandse intensive care afdelingen goed is. Er zijn echter deelgebieden waarop verbetering noodzakelijk is. Het meetinstrument de euroQ2 vragenlijst, moet nog verder worden ontwikkeld en gevalideerd voordat het voor routine gebruik in andere Europese landen kan worden aanbevolen. Studies hiervoor zijn reeds begonnen.

Vertaalde titel van de bijdrage	Het meten van tevredenheid met algemene en einde-leven-zorg op de intensive care: Het euroQ2 project
Originele taal-2	English
Kwalificatie	Doctor of Philosophy
Toekennende instantie	Rijksuniversiteit Groningen
Begeleider(s)/adviseur	Zijlstra, Jan, Supervisor Spronk, P. E., Co-supervisor, Externe Persoon
Datum van toekenning	30-mei-2018
Plaats van publicatie	[Groningen]
Uitgever	Rijksuniversiteit Groningen
Gedrukte ISBN's	9789403404943
Elektronische ISBN's	9789403406282
Status	Published - 2018

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title = "Measuring satisfaction with general and end-of-life care in the intensive care unit: The euroQ2 project",

abstract = "Thinking of about intensive care medicine people imagine machines and heroism. But the true essence of intensive care is making choices. Delivering the right care at the right time and place to the right patient. Involving family members, in the broadest sense of the word, in the care and decision-making, the so called family-centered-care, is important. To know the values, wishes and expectations of families and to see if they are met is a challenging task and the subject of this thesis.To deliver good quality care to patients dying in the ICU and their families is an important part of intensive care medicine. It was shown that American questionnaires, to evaluate this care, were not well suited for our population, we developed and validated, together with a Danish researcher an European adaptation of the instrument.The conclusion of this thesis, using the instrument, is that the quality of ICU care, especially end-of-life care, as perceived by families is good in Danish and Dutch ICUs. There are also possibilities for improvement. The measuring instrument euroQ2 worked well but needs further validation before it can be used routinely in other European countries. Studies trying to achieve this are currently under way.",

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N2 - Thinking of about intensive care medicine people imagine machines and heroism. But the true essence of intensive care is making choices. Delivering the right care at the right time and place to the right patient. Involving family members, in the broadest sense of the word, in the care and decision-making, the so called family-centered-care, is important. To know the values, wishes and expectations of families and to see if they are met is a challenging task and the subject of this thesis.To deliver good quality care to patients dying in the ICU and their families is an important part of intensive care medicine. It was shown that American questionnaires, to evaluate this care, were not well suited for our population, we developed and validated, together with a Danish researcher an European adaptation of the instrument.The conclusion of this thesis, using the instrument, is that the quality of ICU care, especially end-of-life care, as perceived by families is good in Danish and Dutch ICUs. There are also possibilities for improvement. The measuring instrument euroQ2 worked well but needs further validation before it can be used routinely in other European countries. Studies trying to achieve this are currently under way.

AB - Thinking of about intensive care medicine people imagine machines and heroism. But the true essence of intensive care is making choices. Delivering the right care at the right time and place to the right patient. Involving family members, in the broadest sense of the word, in the care and decision-making, the so called family-centered-care, is important. To know the values, wishes and expectations of families and to see if they are met is a challenging task and the subject of this thesis.To deliver good quality care to patients dying in the ICU and their families is an important part of intensive care medicine. It was shown that American questionnaires, to evaluate this care, were not well suited for our population, we developed and validated, together with a Danish researcher an European adaptation of the instrument.The conclusion of this thesis, using the instrument, is that the quality of ICU care, especially end-of-life care, as perceived by families is good in Danish and Dutch ICUs. There are also possibilities for improvement. The measuring instrument euroQ2 worked well but needs further validation before it can be used routinely in other European countries. Studies trying to achieve this are currently under way.

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Measuring satisfaction with general and end-of-life care in the intensive care unit: The euroQ2 project

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