Patients' and parents' experiences during wound care of epidermolysis bullosa from a dyadic perspective: a survey study

Petra J. Mauritz*, Marieke Bolling, Jose C. Duipmans, Mariet Hagedoorn

*Bijbehorende auteur voor dit werk

OnderzoeksoutputAcademicpeer review

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Background Epidermolysis bullosa is a rare, often severe, genetic disorder characterized by fragility of the skin and mucous membranes. Despite the important role of parents during wound care, an essential factor in adapting to this disease, studies focusing on the parent-child relationship during wound care are scarce. The current study is aimed at addressing this gap. Methods A quantitative study among 31 children (n = 21

Originele taal-2English
Artikelnummer313
Aantal pagina's9
TijdschriftOrphanet journal of rare diseases
Volume17
Nummer van het tijdschrift1
DOI's
StatusPublished - 13-aug.-2022

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