TY - JOUR
T1 - Understanding Patients' Preferences
T2 - A Systematic Review of Psychological Instruments Used in Patients' Preference and Decision Studies
AU - Russo, Selena
AU - Jongerius, Chiara
AU - Faccio, Flavia
AU - Pizzoli, Silvia F M
AU - Pinto, Cathy Anne
AU - Veldwijk, Jorien
AU - Janssens, Rosanne
AU - Simons, Gwenda
AU - Falahee, Marie
AU - de Bekker-Grob, Esther
AU - Huys, Isabelle
AU - Postmus, Douwe
AU - Kihlbom, Ulrik
AU - Pravettoni, Gabriella
N1 - Copyright © 2019 ISPOR–The Professional Society for Health Economics and Outcomes Research. Published by Elsevier Inc. All rights reserved.
PY - 2019/4
Y1 - 2019/4
N2 - BACKGROUND: Research has been mainly focused on how to elicit patient preferences, with less attention on why patients form certain preferences.OBJECTIVES: To assess which psychological instruments are currently used and which psychological constructs are known to have an impact on patients' preferences and health-related decisions including the formation of preferences and preference heterogeneity.METHODS: A systematic database search was undertaken to identify relevant studies. From the selected studies, the following information was extracted: study objectives, study population, design, psychological dimensions investigated, and instruments used to measure psychological variables.RESULTS: Thirty-three studies were identified that described the association between a psychological construct, measured using a validated instrument, and patients' preferences or health-related decisions. We identified 33 psychological instruments and 18 constructs, and categorized the instruments into 5 groups, namely, motivational factors, cognitive factors, individual differences, emotion and mood, and health beliefs.CONCLUSIONS: This review provides an overview of the psychological factors and related instruments in the context of patients' preferences and decisions in healthcare settings. Our results indicate that measures of health literacy, numeracy, and locus of control have an impact on health-related preferences and decisions. Within the category of constructs that could explain preference and decision heterogeneity, health locus of control is a strong predictor of decisions in several healthcare contexts and is useful to consider when designing a patient preference study. Future research should continue to explore the association of psychological constructs with preference formation and heterogeneity to build on these initial recommendations.
AB - BACKGROUND: Research has been mainly focused on how to elicit patient preferences, with less attention on why patients form certain preferences.OBJECTIVES: To assess which psychological instruments are currently used and which psychological constructs are known to have an impact on patients' preferences and health-related decisions including the formation of preferences and preference heterogeneity.METHODS: A systematic database search was undertaken to identify relevant studies. From the selected studies, the following information was extracted: study objectives, study population, design, psychological dimensions investigated, and instruments used to measure psychological variables.RESULTS: Thirty-three studies were identified that described the association between a psychological construct, measured using a validated instrument, and patients' preferences or health-related decisions. We identified 33 psychological instruments and 18 constructs, and categorized the instruments into 5 groups, namely, motivational factors, cognitive factors, individual differences, emotion and mood, and health beliefs.CONCLUSIONS: This review provides an overview of the psychological factors and related instruments in the context of patients' preferences and decisions in healthcare settings. Our results indicate that measures of health literacy, numeracy, and locus of control have an impact on health-related preferences and decisions. Within the category of constructs that could explain preference and decision heterogeneity, health locus of control is a strong predictor of decisions in several healthcare contexts and is useful to consider when designing a patient preference study. Future research should continue to explore the association of psychological constructs with preference formation and heterogeneity to build on these initial recommendations.
KW - decision making
KW - instruments
KW - measurements
KW - patient preference
KW - psychological variables
KW - stated preferences
KW - TRIDIMENSIONAL PERSONALITY QUESTIONNAIRE
KW - MULTIDIMENSIONAL HEALTH LOCUS
KW - CONNOR-DAVIDSON RESILIENCE
KW - SELF-EFFICACY
KW - DISPOSITIONAL OPTIMISM
KW - INDIVIDUAL-DIFFERENCES
KW - BREAST-CANCER
KW - MAKING STYLE
KW - OF-LIFE
KW - LITERACY
U2 - 10.1016/j.jval.2018.12.007
DO - 10.1016/j.jval.2018.12.007
M3 - Review article
C2 - 30975401
SN - 1098-3015
VL - 22
SP - 491
EP - 501
JO - Value in Health
JF - Value in Health
IS - 4
ER -